Benjamin experienced many feelings today, but one was constant: hunger. This Dexamethasone pulse is in full swing. He’s barely finished with one meal before asking for the next. This morning… Continue Reading Day 202
Day 202
on Tag: Erwinia
on Day 201
on Benji woke up early with a tender, hungry tummy. He had Kytril, morning Dexamethasone, first breakfast and second breakfast, and then requested a rare morning nap. I happily obliged and… Continue Reading Day 201
Day 200
on Benjamin slept extremely well in his new bed. He was the last to rise in the house. We made breakfast, packed lunch, and headed to All Children’s. His attitude was… Continue Reading Day 200
Day 199
on From the time we woke up until _____ (we’re still going), we worked on Project Kids’ Room Renovation 2015. It has been such a productive day, and for the first… Continue Reading Day 199
Day 197
on We all got a good rainy night’s sleep. When Benjamin was telling me about his beach dreams over breakfast, my own dreams took form; I remembered one in which a stranger’s hand… Continue Reading Day 197
Day 196
on At breakfast this morning, I checked the status of Benjamin’s scrapes and his port, and noticed that the right side of his dressing had come loose. It was certainly “non-occlusive,”… Continue Reading Day 196