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Tag: acute lymphoblastic leukemia

Day 768/140

Laura Gilkey on February 7, 2017May 10, 2017

“Hope is important because it can make the present moment less difficult to bear. If we believe that tomorrow will be better, we can bear a hardship today.” ~Thich Nhat… Continue Reading Day 768/140

Categories: Uncategorized Tags: acute lymphoblastic leukemia, clinical trial, fear, fever, home, platelets, port, relapse, steroids64 Comments

Day 767/139

Laura Gilkey on February 6, 2017May 10, 2017

Benjamin continues to do his brave work, and we continue to make the best decisions we can for him. This has always been true, of course, but we are accustomed… Continue Reading Day 767/139

Categories: Uncategorized Tags: acute lymphoblastic leukemia, blood transfusions, death, hemoglobin, home, hospice, palliative care, platelets, relapse, steroids67 Comments

Day 766/138

Laura Gilkey on February 5, 2017May 10, 2017

The sky at shift change was a thick, foggy red. This is is a strange and confusing time. I am trying to accept all phases of this slow and peaceful… Continue Reading Day 766/138

Categories: Uncategorized Tags: acute lymphoblastic leukemia, death, home, hospice, pain, palliative care, platelets, relapse, research60 Comments

Day 765/137

Laura Gilkey on February 5, 2017May 10, 2017

The parallels between birth and death continue to make themselves obvious. Both processes have a natural ebb and flow. When there is a deep breath, it is followed by a… Continue Reading Day 765/137

Categories: Uncategorized Tags: acute lymphoblastic leukemia, blood transfusion, death, family, pain, platelets, relapse, TPN64 Comments

Day 764/136

Laura Gilkey on February 3, 2017May 10, 2017

Benjamin slept deeply and peacefully last night and I followed, breathing with him. I woke up at shift change, grateful to see one of my favorite nurses coming on board… Continue Reading Day 764/136

Categories: Uncategorized Tags: acute lymphoblastic leukemia, death, family, pain, relapse, support106 Comments

Day 763/135

Laura Gilkey on February 2, 2017May 10, 2017

Benjamin is beginning his bravest work, and we have the honor of supporting him through it. Today was sweet and sad and slow and steady. Benjamin was surrounded by his… Continue Reading Day 763/135

Categories: Uncategorized Tags: acute lymphoblastic leukemia, cousins, death, oxygen, relapse, siblings144 Comments

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