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Tag: acute lymphoblastic leukemia

Day 671/43

Laura Gilkey on November 2, 2016November 3, 2016

Benji’s Blinatumomab began its slow drip at 5:12 this morning. Twenty hours in, and so far, so good. It seems like such a mundane phrase for such a big day.… Continue Reading Day 671/43

Categories: Uncategorized Tags: acute lymphoblastic leukemia, Blinatumomab, bone marrow transplant, Cytokines, dexamethasone, fever, immunotherapy, radiation, relapse, steroids4 Comments

Day 670/42

Laura Gilkey on November 1, 2016November 2, 2016

We’re all moved in up here on the 7th floor. I hope to get some sleep tonight, but my heart is beating too quickly for that to happen just yet. Benji’s… Continue Reading Day 670/42

Categories: Uncategorized Tags: acute lymphoblastic leukemia, Blinatumomab, immunotherapy, relapse9 Comments

Day 669/41

Laura Gilkey on October 31, 2016October 31, 2016

Michael woke us all up this morning to watch the sun rise over the Atlantic Ocean. I’m so thankful he did. I have tried for 669 days to put into… Continue Reading Day 669/41

Categories: Uncategorized Tags: acute lymphoblastic leukemia, Blinatumomab, family, friends, immunotherapy, relapse3 Comments

Day 668/40

Laura Gilkey on October 30, 2016

I don’t want this to end. I’m feeling such deep gratitude for these special days and nights, and for these people, for whom the love in my heart bursts forth… Continue Reading Day 668/40

Categories: Uncategorized Tags: acute lymphoblastic leukemia, family, relapse, vacation4 Comments

Day 667/39

Laura Gilkey on October 29, 2016October 29, 2016

We saw a porpoise from our campsite this morning before I’d even finished my first cup of coffee. Benji’s camper is parked just a few yards from the Indian River,… Continue Reading Day 667/39

Categories: Uncategorized Tags: acute lymphoblastic leukemia, allopurinol, CMMRD, family, relapse, vacation4 Comments

Day 666/38

Laura Gilkey on October 28, 2016October 29, 2016

Huge ups and huge downs today. I’m choosing to focus on the ups as much as I can. The downs are starting to make me feel numb. I don’t want… Continue Reading Day 666/38

Categories: Uncategorized Tags: acute lymphoblastic leukemia, Blinatumomab, bone marrow aspirate, Cytokines, immunotherapy, make-a-wish, relapse, steroids6 Comments

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