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Tag: acute lymphoblastic leukemia

Day 677/49

Laura Gilkey on November 8, 2016November 9, 2016

Benjamin’s day began at 5:30am, when our night nurse came to deaccess his port. He was sleepy but kind, and understood the plan. The nurse used a fast acting numbing… Continue Reading Day 677/49

Categories: Uncategorized Tags: acute lymphoblastic leukemia, Blinatumomab, CAR-T, dexamethasone, immunotherapy, platelets, relapse, steroids8 Comments

Day 676/48

Laura Gilkey on November 7, 2016November 8, 2016

I was hopeful this morning’s labs would show some reverse in yesterday’s trend, but they did not. The blasts in Benji’s blood increased a little more. His platelet transfusion was completely… Continue Reading Day 676/48

Categories: Uncategorized Tags: acute lymphoblastic leukemia, Blinatumomab, CAR-T, dexamethasone, immunotherapy, relapse10 Comments

Day 675/47

Laura Gilkey on November 6, 2016November 7, 2016

Benjamin’s labs this morning showed a huge increase in leukemia blasts. More than double, up to 52%. We haven’t seen a peripheral number that high since diagnosis. His platelets dropped… Continue Reading Day 675/47

Categories: Uncategorized Tags: acute lymphoblastic leukemia, bladder, Blinatumomab, CAR-T, immunotherapy, lasix, platelets, relapse, transfusion12 Comments

Day 674/46

Laura Gilkey on November 5, 2016November 6, 2016

Today was lovely. Benjamin felt great and was wildly energetic as soon as he woke up. Out of isolation, he was off to the races to play with the nurses… Continue Reading Day 674/46

Categories: Uncategorized Tags: acute lymphoblastic leukemia, grandparents, lasix, relapse2 Comments

Day 673/45

Laura Gilkey on November 4, 2016November 5, 2016

Benji slept soundly. When he woke up, he complained pretty seriously of stomach pain. He stood up to go to the bathroom and blood filled the tubing coming from his port.… Continue Reading Day 673/45

Categories: Uncategorized Tags: acute lymphoblastic leukemia, Blinatumomab, relapse, siblings1 Comment

Day 672/44

Laura Gilkey on November 3, 2016November 4, 2016

Benji and I woke up at shift change, but he went back to sleep almost immediately. I stayed up for the gorgeous sunrise. When he woke for the day a… Continue Reading Day 672/44

Categories: Uncategorized Tags: acute lymphoblastic leukemia, Blinatumomab, fever, immunotherapy, relapse3 Comments

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