Benjamin’s day began at 5:30am, when our night nurse came to deaccess his port. He was sleepy but kind, and understood the plan. The nurse used a fast acting numbing… Continue Reading Day 677/49
Tag: acute lymphoblastic leukemia
Day 676/48
I was hopeful this morning’s labs would show some reverse in yesterday’s trend, but they did not. The blasts in Benji’s blood increased a little more. His platelet transfusion was completely… Continue Reading Day 676/48
Day 675/47
Benjamin’s labs this morning showed a huge increase in leukemia blasts. More than double, up to 52%. We haven’t seen a peripheral number that high since diagnosis. His platelets dropped… Continue Reading Day 675/47
Day 674/46
Today was lovely. Benjamin felt great and was wildly energetic as soon as he woke up. Out of isolation, he was off to the races to play with the nurses… Continue Reading Day 674/46
Day 673/45
Benji slept soundly. When he woke up, he complained pretty seriously of stomach pain. He stood up to go to the bathroom and blood filled the tubing coming from his port.… Continue Reading Day 673/45
Day 672/44
Benji and I woke up at shift change, but he went back to sleep almost immediately. I stayed up for the gorgeous sunrise. When he woke for the day a… Continue Reading Day 672/44