Benjamin has taken his last dose of Dexamethasone until long term maintenance. We won’t see the steroid again any sooner than November, and I will not be missing it. I… Continue Reading Day 206
Day 206
on Category: Uncategorized
on Day 205
on I woke up early this morning, feeling fantastic. I felt like a page had turned for me. I felt motivated in a way I haven’t felt in quite some time,… Continue Reading Day 205
Day 204
on It rained nearly all day here in Sarasota. Benjamin woke up in good spirits, but with demanding hunger. I am thankful that he enjoys working in the kitchen. He had… Continue Reading Day 204
Day 203
on This steroid pulse week is bringing up so many emotions. After much frustration I’ve decided to use this as an opportunity for learning. Benjamin will have a steroid pulse every… Continue Reading Day 203
Day 202
on Benjamin experienced many feelings today, but one was constant: hunger. This Dexamethasone pulse is in full swing. He’s barely finished with one meal before asking for the next. This morning… Continue Reading Day 202
Day 201
on Benji woke up early with a tender, hungry tummy. He had Kytril, morning Dexamethasone, first breakfast and second breakfast, and then requested a rare morning nap. I happily obliged and… Continue Reading Day 201