Skip to content
  • Benjamin the Brave
  • The Benjamin Gilkey Fund
  • Rainbow Stars
  • Acute Lymphoblastic Leukemia
  • CMMRD
  • Resources
  • Blog

Category: Uncategorized

Day 230

Laura Gilkey on August 19, 2015August 19, 2015

I climbed up into Benji’s loft bed last night to read to him from The Last of the Really Great Whangdoodles (we’re on a Roald Dahl break until I can restock… Continue Reading Day 230

Categories: Uncategorized4 Comments

Day 229

Laura Gilkey on August 18, 2015August 18, 2015

I woke up before the sun today to help Banyan get ready for yet another adventure. He was invited to drift down the Rainbow River in an inner tube, watching the fish… Continue Reading Day 229

Categories: Uncategorized Tags: acute lymphoblastic leukemia, Erwinia, homeschool, kytril, nausea, school, scopolomine, siblings, vincristine2 Comments

Day 228

Laura Gilkey on August 17, 2015August 18, 2015

This blank space. The rain falling. The kava tea in my mug. All of these things will conspire to reconstruct the day, to paint it with peace and gratitude, and… Continue Reading Day 228

Categories: Uncategorized Tags: absolute neutrophil count (ANC), acute lymphoblastic leukemia, Erwinia, siblings, vincristine4 Comments

Day 227

Laura Gilkey on August 16, 2015

Benji’s counts continue to drop. There are more bruises today, and he’s still quite pale, but he feels terrific. He played with friends nearly all morning. He splashed and swam… Continue Reading Day 227

Categories: Uncategorized Tags: acute lymphoblastic leukemia, Erwinia, neutropenia, school, transfusion, vincristine1 Comment

Day 226

Laura Gilkey on August 15, 2015

Benji’s blood counts are dropping. It’s pretty incredible how easily we can see this now. He is pale, and when he scratches his arm, he leaves a trail of petichiae.… Continue Reading Day 226

Categories: Uncategorized Tags: acute lymphoblastic leukemia, blood counts, petichiaeLeave a comment

Day 225

Laura Gilkey on August 14, 2015

Michael had to work super late last night. He was setting up his makeshift drafting station at the dining room table, and the boys were winding down with a Beat… Continue Reading Day 225

Categories: Uncategorized Tags: acute lymphoblastic leukemiaLeave a comment

Posts navigation

Older posts
Newer posts

Sidebar

Footer Content