This has been our longest stretch away from the hospital since October. It’s been sweet, nourishing, comforting, and necessary. And I am so ready for it to end. Benjamin needs… Continue Reading Day 746/118
Day 746/118
on Category: Uncategorized
on Day 745/117
on The ebbing and flowing continues on this gorgeous Sunday. Benjamin needed no morphine, no Kytril, and no vomit basin today. These are all blessings. It’s also a blessing that I have… Continue Reading Day 745/117
Day 744/116
on Benji continued his pattern of ebbs and flows today. He took many baths, used his hot water bottle, napped and rested. He had one dose of morphine for pain and one… Continue Reading Day 744/116
Day 743/115
on Our path looks much more clear today. The National Institutes of Health considers Benjamin a viable candidate for their CAR-T clinical trial targeting the CD22 protein. It’s such a relief to… Continue Reading Day 743/115
Day 742/114
on Our intention was unmistakable. A clear path toward Benjamin’s perfect healing. Today we heard the words “no clear path,” and “imperfect options.” I realized today that we aren’t waiting for a path to appear… Continue Reading Day 742/114
Day 741/113
on Today was a really hard day. Benjamin woke up in pain, with his spleen hurting as badly as it did last night. I gave him a dose of morphine and… Continue Reading Day 741/113