The lesson today is one I should know by now. There are no “patterns.” One day at a time. Benjamin was super tired today. Two naps by 1pm. The irritability… Continue Reading Day 20
Day 20
on Category: Uncategorized
on Day 19
on Today was a lot easier than yesterday. Benjamin was still quite hungry; he woke up at 7, and by 8, he’d eaten a sushi roll, an English muffin pizza, two… Continue Reading Day 19
Day 18
on Day 18. Halfway through the Induction Phase. That means we have ten more days of dexamethasone during this stage of Benjamin’s treatment. In a way, it’s like a light at… Continue Reading Day 18
Day 17
on Today started with sweetness, ended with sweetness, and held many moments of sweetness in between. There were also moments of harsh reality that tried hard to cast their shadows. I’m… Continue Reading Day 17
Day 16
on So many people sent words of support today to check on Benji after yesterday’s treatment. There were gifts delivered in the mail and gifts delivered for the fridge. We shared… Continue Reading Day 16
Day 15
on Benjamin is “a Friday guy.” This is the label that stuck with us early on, given to him by one of the nurses instructing us on our road map of… Continue Reading Day 15