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Benjamin the Brave

Read about our wonderful boy, and about the unique giving opportunity in his name through the Johns Hopkins All Children's Foundation.

Rainbow Stars

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Blog

Our daily journal chronicling Benjamin's leukemia diagnosis, his 772 days of treatment, his life, his death, and his unparalleled bravery.

Day 233

Laura Gilkey on August 22, 2015August 22, 2015

It’s the last weekend of summer. It’s bittersweet, but mostly sweet. I feel much calmer than I thought I would with the new schoolyear just a moment away. Things will… Continue Reading Day 233

Categories: Uncategorized Tags: acute lymphoblastic leukemia, school1 Comment

Day 232

Laura Gilkey on August 21, 2015August 21, 2015

Banyan downloaded a new audiobook–Tales of a Fourth Grade Nothing–to keep Benji entertained on the drive over the Skyway this morning. It is read by Judy Blume herself, so it’s… Continue Reading Day 232

Categories: Uncategorized Tags: absolute neutrophil count (ANC), acute lymphoblastic leukemia, cytarabine, Erwinia, siblingsLeave a comment

Day 231

Laura Gilkey on August 20, 2015August 20, 2015

I found the clarity I needed to start this day by waking up before the sun and walking the Ringling Bridge with my dear friend. As a special treat, I… Continue Reading Day 231

Categories: Uncategorized Tags: acute lymphoblastic leukemia, Erwinia, homeschool, school, siblings3 Comments

Day 230

Laura Gilkey on August 19, 2015August 19, 2015

I climbed up into Benji’s loft bed last night to read to him from The Last of the Really Great Whangdoodles (we’re on a Roald Dahl break until I can restock… Continue Reading Day 230

Categories: Uncategorized4 Comments

Day 229

Laura Gilkey on August 18, 2015August 18, 2015

I woke up before the sun today to help Banyan get ready for yet another adventure. He was invited to drift down the Rainbow River in an inner tube, watching the fish… Continue Reading Day 229

Categories: Uncategorized Tags: acute lymphoblastic leukemia, Erwinia, homeschool, kytril, nausea, school, scopolomine, siblings, vincristine2 Comments

Day 228

Laura Gilkey on August 17, 2015August 18, 2015

This blank space. The rain falling. The kava tea in my mug. All of these things will conspire to reconstruct the day, to paint it with peace and gratitude, and… Continue Reading Day 228

Categories: Uncategorized Tags: absolute neutrophil count (ANC), acute lymphoblastic leukemia, Erwinia, siblings, vincristine4 Comments

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