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Benjamin the Brave

Read about our wonderful boy, and about the unique giving opportunity in his name through the Johns Hopkins All Children's Foundation.

Rainbow Stars

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Blog

Our daily journal chronicling Benjamin's leukemia diagnosis, his 772 days of treatment, his life, his death, and his unparalleled bravery.

Day 263

Laura Gilkey on September 21, 2015

Michael and I both had a hard time sleeping last night, so when Benji padded in before 6am asking for breakfast, I begged for more time. But his hunger turns… Continue Reading Day 263

Categories: Uncategorized Tags: acute lymphoblastic leukemia, antibiotics, liver, methotrexate, schoolLeave a comment

Day 262

Laura Gilkey on September 20, 2015

We all caught up on sleep this morning after last night’s late return from the emergency room. Benji woke up feeling great, and his back is neither red nor warm.… Continue Reading Day 262

Categories: Uncategorized Tags: acute lymphoblastic leukemia, antibiotics, liver, maintenanceLeave a comment

Day 261

Laura Gilkey on September 20, 2015September 20, 2015

What a roller coaster. We went up to the All Children’s Emergency Care Center tonight, totally unexpectedly. We are very grateful to be home. Benji developed what looked like a heat… Continue Reading Day 261

Categories: Uncategorized Tags: absolute neutrophil count (ANC), acute lymphoblastic leukemia, Clindamycin, methotrexateLeave a comment

Day 260

Laura Gilkey on September 18, 2015

For the third day in a row–an unprecedented stretch since diagnosis–Benji went to school. He woke up with a tummy ache that was intense and anxious. He begged for Kytril,… Continue Reading Day 260

Categories: Uncategorized Tags: acute lymphoblastic leukemia, essential oils, kytril, school, sports1 Comment

Day 259

Laura Gilkey on September 17, 2015September 17, 2015

It is strange having both children at school again. I find myself having a hard time focusing as I try to reintegrate into the world. I know I’ll get there, and I… Continue Reading Day 259

Categories: Uncategorized Tags: acute lymphoblastic leukemia, maintenance, schoolLeave a comment

Day 258

Laura Gilkey on September 16, 2015

Benji went to school all day today. He woke up early clutching his tummy and asking for Kytril. He looked pale to me and I wasn’t sure how the morning… Continue Reading Day 258

Categories: Uncategorized Tags: acute lymphoblastic leukemia, kytril, school3 Comments

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