According to our night nurse, Benji “slept through the night.” That’s not quite accurate, but we definitely got more sleep than we have in many days. It was like a… Continue Reading Day 287
Day 287
on on Day 286
on Benji’s lips hurt again last night, and he just couldn’t leave them alone. We didn’t get much sleep up here on the seventh floor. Sarah spent the night with us… Continue Reading Day 286
Day 285
on Benjamin is no longer in isolation. He has been fever free for well over 24 hours, and his latest swab came back negative for rhinovirus–he doesn’t even have a common… Continue Reading Day 285
Day 284
on Benji’s little wet cough persisted in the night. He complied with my requests to inhale deeply and get his coughs out, and by the morning his chest sounded completely clear,… Continue Reading Day 284
Day 283
on “Mucosal desquamation.” That’s the name for what is happening inside Benjamin’s body due to Methotrexate-induced Stevens Johnson Syndrome. His lips, mouth, tongue, throat and belly are all sloughing internally and… Continue Reading Day 283
Day 282
on This roller coaster hasn’t come to a halt just yet. My intentions are being refocused tonight. I cannot grow complacent. It isn’t enough to just wait to be discharged. We… Continue Reading Day 282