Benjamin continues to do his brave work, and we continue to make the best decisions we can for him. This has always been true, of course, but we are accustomed… Continue Reading Day 767/139
Day 767/139
on on Day 766/138
on The sky at shift change was a thick, foggy red. This is is a strange and confusing time. I am trying to accept all phases of this slow and peaceful… Continue Reading Day 766/138
Day 765/137
on The parallels between birth and death continue to make themselves obvious. Both processes have a natural ebb and flow. When there is a deep breath, it is followed by a… Continue Reading Day 765/137
Day 764/136
on Benjamin slept deeply and peacefully last night and I followed, breathing with him. I woke up at shift change, grateful to see one of my favorite nurses coming on board… Continue Reading Day 764/136
Day 763/135
on Benjamin is beginning his bravest work, and we have the honor of supporting him through it. Today was sweet and sad and slow and steady. Benjamin was surrounded by his… Continue Reading Day 763/135
Day 762/134
on Energy can neither be created nor destroyed. ~First Law of Thermodynamics Benjamin, our brave, sparkly child, is dying. I realized today that I never actually believed this would happen. Not… Continue Reading Day 762/134