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Benjamin the Brave

Read about our wonderful boy, and about the unique giving opportunity in his name through the Johns Hopkins All Children's Foundation.

Rainbow Stars

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Blog

Our daily journal chronicling Benjamin's leukemia diagnosis, his 772 days of treatment, his life, his death, and his unparalleled bravery.

Day 461

Laura Gilkey on April 6, 2016

Today is our fourteenth wedding anniversary. It’s been a day of reflection and gratitude. I think about the series of events that caused my path to intersect with Michael’s, and my… Continue Reading Day 461

Categories: Uncategorized Tags: acute lymphoblastic leukemia, emotions, marriageLeave a comment

Day 460

Laura Gilkey on April 6, 2016

I was given a moment of grace this morning. A feeling of calm so complete it washed over my whole being. I’m deeply grateful, and re-rooted into the ground. After over-analyzing… Continue Reading Day 460

Categories: Uncategorized Tags: acute lymphoblastic leukemia, fear, school, writingLeave a comment

Day 459

Laura Gilkey on April 4, 2016

I think everyone was a little tired this morning, but we all hit the ground running. Michael went to his breakfast meeting and the boys got ready for school. After… Continue Reading Day 459

Categories: Uncategorized Tags: 6MP, acute lymphoblastic leukemia, baseball, fear, medication, paranoia, school, siblings1 Comment

Day 458

Laura Gilkey on April 3, 2016

We came home from St. Pete super late last night. The boys were sleeping soundly at Kathy’s house. I stopped on my way to bed to check the pill box.… Continue Reading Day 458

Categories: Uncategorized Tags: acute lymphoblastic leukemia, baseball, exhaustion, fearLeave a comment

Day 457

Laura Gilkey on April 2, 2016

Benji’s baseball game was rained out this afternoon, after our team played the two best innings they’ve played all season. Benji made a great catch at second for an out,… Continue Reading Day 457

Categories: Uncategorized Tags: 6MP, acute lymphoblastic leukemia, grandparentsLeave a comment

Day 456

Laura Gilkey on April 1, 2016

I woke up again and went straight to the pill box, just to be sure. I imagine this will be routine for the next two years. Benji woke up feeling… Continue Reading Day 456

Categories: Uncategorized Tags: acute lymphoblastic leukemia, baseballLeave a comment

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