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Benjamin the Brave

Read about our wonderful boy, and about the unique giving opportunity in his name through the Johns Hopkins All Children's Foundation.

Rainbow Stars

Request a Rainbow Star for a child with cancer, volunteer to make stars, or order a prismatic rainbow star to support research.

Blog

Our daily journal chronicling Benjamin's leukemia diagnosis, his 772 days of treatment, his life, his death, and his unparalleled bravery.

Day 491

Laura Gilkey on May 6, 2016

It’s been a beautiful and emotional day. I’m grateful for this sweet white space. I need to shape words around feelings that have no names. The weather has cooled off… Continue Reading Day 491

Categories: Uncategorized Tags: acute lymphoblastic leukemia, maintenance, methotrexate toxicity, rainbow stars, siblingsLeave a comment

Day 490

Laura Gilkey on May 5, 2016

This is everything.

Categories: Uncategorized Tags: acute lymphoblastic leukemia, siblings2 Comments

Day 489

Laura Gilkey on May 4, 2016May 4, 2016

Today is May 4th. That means that Benjamin has exactly two years of treatment left to go. I calculated this morning that he is 40% of the way to the… Continue Reading Day 489

Categories: Uncategorized Tags: 6MP, acute lymphoblastic leukemia, fundraising, methotrexate, siblings3 Comments

Day 488

Laura Gilkey on May 3, 2016

I am almost out of gas, literally and figuratively. My car’s tank has 8 miles left in it. We hit the ground running at 6am, all of us, and didn’t… Continue Reading Day 488

Categories: Uncategorized Tags: 6MP, acute lymphoblastic leukemia, baseball, hunger, methotrexate, siblings, steroidsLeave a comment

Day 487

Laura Gilkey on May 2, 2016

Back to work, back to school, back to sports, back to packing lunches and homework and all things beautifully mundane. I believe the increase in Benji’s medicines are beginning to… Continue Reading Day 487

Categories: Uncategorized Tags: acute lymphoblastic leukemia, detoxification, maintenanceLeave a comment

Day 486

Laura Gilkey on May 1, 2016

We had a lovely time in Crystal River. The ladies explored sweet little shops and had a nice lunch and conversation, and the boys went offshore for a full day… Continue Reading Day 486

Categories: Uncategorized Tags: acute lymphoblastic leukemia, family, remission1 Comment

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