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Benjamin the Brave

Read about our wonderful boy, and about the unique giving opportunity in his name through the Johns Hopkins All Children's Foundation.

Rainbow Stars

Request a Rainbow Star for a child with cancer, volunteer to make stars, or order a prismatic rainbow star to support research.

Blog

Our daily journal chronicling Benjamin's leukemia diagnosis, his 772 days of treatment, his life, his death, and his unparalleled bravery.

Day 521

Laura Gilkey on June 5, 2016June 5, 2016

We left Gainesville this afternoon. Gainesville still feels like home to me, in a strange way. Not like my home feels now, or like my home when I was a… Continue Reading Day 521

Categories: Uncategorized Tags: acute lymphoblastic leukemia, detoxification, family, friends1 Comment

Day 520

Laura Gilkey on June 4, 2016June 5, 2016

Last night, Lilye graduated. Tonight, we celebrated! It was a magical day!

Categories: Uncategorized Tags: acute lymphoblastic leukemia, family1 Comment

Day 519

Laura Gilkey on June 4, 2016June 5, 2016

School’s out for summer!  Such sweet words. At lunchtime I joined Benji’s class for the last time, armed with nineteen balloons, to celebrate the completion of second grade and thank… Continue Reading Day 519

Categories: Uncategorized Tags: acute lymphoblastic leukemia, school3 Comments

Day 518

Laura Gilkey on June 2, 2016June 2, 2016

I couldn’t sleep last night. My eyes were wide open until at least 2am. My mind was racing. Still, I’m thankful I woke up before the sun for our last… Continue Reading Day 518

Categories: Uncategorized Tags: acute lymphoblastic leukemia, fever, schoolLeave a comment

Day 517

Laura Gilkey on June 1, 2016

Everyone was well enough for school today, which is always a blessing. After I picked the boys up this afternoon, we had a few minutes to kill before going to Benjamin’s end-of-season… Continue Reading Day 517

Categories: Uncategorized Tags: absolute neutrophil count, acute lymphoblastic leukemia, baseball, immune system, siblings1 Comment

Day 516

Laura Gilkey on May 31, 2016May 31, 2016

Banyan stayed home from school this morning. Both boys woke up tired; Benji said his legs hurt, but once he remembered it was Board Game Day, he perked right up.… Continue Reading Day 516

Categories: Uncategorized Tags: acute lymphoblastic leukemia, immune system, neutrophils, school, siblings, vaccinations, virus1 Comment

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