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Benjamin the Brave

Read about our wonderful boy, and about the unique giving opportunity in his name through the Johns Hopkins All Children's Foundation.

Rainbow Stars

Request a Rainbow Star for a child with cancer, volunteer to make stars, or order a prismatic rainbow star to support research.

Blog

Our daily journal chronicling Benjamin's leukemia diagnosis, his 772 days of treatment, his life, his death, and his unparalleled bravery.

Day 551

Laura Gilkey on July 6, 2016

Today, Benji began theĀ fourth of eleven total 84-day cycles during this long term maintenance phase of treatment. It has been a very long day, for Benjamin especially. I am so… Continue Reading Day 551

Categories: Uncategorized Tags: acute lymphoblastic leukemia, intrathecal methotrexate, lumbar puncture, nausea, siblings, steroids, vincristine1 Comment

Day 550

Laura Gilkey on July 4, 2016

Today, July 4th, we rested, relaxed, feasted with family, enjoyed the water, and shot a few fireworks in the street as night fell. Tomorrow, July 5th, we return to All… Continue Reading Day 550

Categories: Uncategorized Tags: acute lymphoblastic leukemia, intrathecal chemotherapy, intrathecal methotrexate, lumbar puncture, steroids, vincristine1 Comment

Day 549

Laura Gilkey on July 3, 2016

We are home and happy after a third day on the water up in Crystal River. For the second straight day we caught our limit in scallops, this time with… Continue Reading Day 549

Categories: Uncategorized Tags: acute lymphoblastic leukemia, family, travel, water1 Comment

Day 548

Laura Gilkey on July 2, 2016

We had an action packed day on the water. We weathered some inclement conditions with Captain Dennis and family until the seas were calm enough to dive down for the… Continue Reading Day 548

Categories: Uncategorized Tags: acute lymphoblastic leukemia, family, genetics, travel, waterLeave a comment

Day 547

Laura Gilkey on July 1, 2016

We arrived in Crystal River today. This place is so beautiful. We’re all so grateful to be here. Michael’s Uncle Dennis took us out on an afternoon boat cruise. He… Continue Reading Day 547

Categories: Uncategorized Tags: acute lymphoblastic leukemia, family, swimming, travel, waterLeave a comment

Day 546

Laura Gilkey on June 30, 2016June 30, 2016

Benjamin climbed into ourĀ bed this morning, where he stayed, sleeping soundly, until after 11am. This was a little disconcerting, and unlike him. When he climbed in he said he didn’t… Continue Reading Day 546

Categories: Uncategorized Tags: acute lymphoblastic leukemia, hair, neuropathy, travel, vincristine3 Comments

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