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Benjamin the Brave

Read about our wonderful boy, and about the unique giving opportunity in his name through the Johns Hopkins All Children's Foundation.

Rainbow Stars

Request a Rainbow Star for a child with cancer, volunteer to make stars, or order a prismatic rainbow star to support research.

Blog

Our daily journal chronicling Benjamin's leukemia diagnosis, his 772 days of treatment, his life, his death, and his unparalleled bravery.

Day 569

Laura Gilkey on July 23, 2016July 23, 2016

Benji and I were out at South Lido bright and early to paddle through the mangrove tunnels and cast a few lines in the shallow water. First, we met with… Continue Reading Day 569

Categories: Uncategorized Tags: acute lymphoblastic leukemia, blood1 Comment

Day 568

Laura Gilkey on July 22, 2016

I had a bit of a personal breakthrough last night. As I was refilling Benji’s pill box, I counted ahead to next week and realized I would be a full… Continue Reading Day 568

Categories: Uncategorized Tags: 6MP, acute lymphoblastic leukemia, fear, glutamine, hair, pharmacyLeave a comment

Day 567

Laura Gilkey on July 21, 2016

Last Thursday Benjamin woke up with stomach pain and nausea. Today, nothing. I’m grateful he’s tolerating his medicine more successfully this week. I just have this feeling that he will… Continue Reading Day 567

Categories: Uncategorized Tags: acute lymphoblastic leukemia, art, nausea1 Comment

Day 566

Laura Gilkey on July 20, 2016

Benji has been feeling great this week. He is breaking out on his cheeks, which is either the responsibility of his medicines or this insane heat. His skin has always… Continue Reading Day 566

Categories: Uncategorized Tags: acute lymphoblastic leukemia, hair1 Comment

Day 565

Laura Gilkey on July 19, 2016July 20, 2016

Benji and I had a busy day. He went to meeting with me and a job site for photo scouting in the morning. We took our sweet pup to the… Continue Reading Day 565

Categories: Uncategorized Tags: acute lymphoblastic leukemia, behavior, methotrexate toxicity, remission, siblings1 Comment

Day 564

Laura Gilkey on July 18, 2016July 18, 2016

Benji and I started playing Pokemon Go today. I knew resistance was futile; nearly every kid we know is playing it (except for Banyan, who is blissfully unaware of the… Continue Reading Day 564

Categories: Uncategorized Tags: acute lymphoblastic leukemia, camp, grandparents, siblingsLeave a comment

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