Benjamin has received his second dose of Inotuzumab, and everything went smoothly. The morning report revealed more of the same: a slow and steady decline of leukemia cells. Benji’s total… Continue Reading Day 713/85
Day 713/85
on on Day 712/84
on Benji woke up before the sun in horrible pain. I wondered what was happening; he felt so much better yesterday! He begged for a bath, but declined pain medicine. The… Continue Reading Day 712/84
Day 711/83
on Hope is such a strange and morphing creature. This morning, the fog was so thick outside our window that it masked the world below. Nothing else was visible. With the… Continue Reading Day 711/83
Day 710/82
on It appears as though yesterday’s platelet count was a fluke. Today, the number was back down to 2,000. All day yesterday I tried to shush the voice in my head… Continue Reading Day 710/82
Day 709/81
on Benji needed more morphine and heat packs throughout the night to stay comfortable, but these tools worked, and he slept well. He woke up in pain and wanted a hot… Continue Reading Day 709/81
Day 708/80
on There were a lot of positive things about today that I’d like to focus on. Right now I’m finding it difficult. I’m grateful for this space in which to sort… Continue Reading Day 708/80