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Benjamin the Brave

Read about our wonderful boy, and about the unique giving opportunity in his name through the Johns Hopkins All Children's Foundation.

Rainbow Stars

Request a Rainbow Star for a child with cancer, volunteer to make stars, or order a prismatic rainbow star to support research.

Blog

Our daily journal chronicling Benjamin's leukemia diagnosis, his 772 days of treatment, his life, his death, and his unparalleled bravery.

Day 5

Laura Gilkey on January 6, 2015January 17, 2015

We got a good night’s sleep last night. Today was Tuesday, so the doctors had walking rounds. Dr. Moore isn’t on call this week so we’ve been talking with Dr.… Continue Reading Day 5

Categories: Uncategorized Tags: absolute neutrophil count, acute lymphoblastic leukemia, ANCLeave a comment

Day 4

Laura Gilkey on January 5, 2015January 17, 2015

I’m relieved and happy to report two good days running. Benji has had several visitors yesterday and today–family, friends, teachers–and was upbeat and positive the whole time. By the end… Continue Reading Day 4

Categories: Uncategorized Tags: acute lymphoblastic leukemia, chemotherapy, hospital homebound, vincristineLeave a comment

Day 3

Laura Gilkey on January 4, 2015January 17, 2015

Yesterday was a lesson in expectations. We learned they can be promptly chucked out the window when leukemia is involved. After a stellar morning, Benjamin started feeing pretty uncomfortable around… Continue Reading Day 3

Categories: Uncategorized Tags: acute lymphoblastic leukemia, fever, mediport, vincristineLeave a comment

Day 2

Laura Gilkey on January 3, 2015January 17, 2015

So many phone calls. So many texts and messages. So many cards, letters, acts of kindness. So many sweet things to look at, play with, and eat in this little… Continue Reading Day 2

Categories: Uncategorized Tags: acute lymphoblastic leukemia, chemotherapy, vincristineLeave a comment

Day 1

Laura Gilkey on January 2, 2015January 17, 2015

The first big step in Benjamin’s healing journey just happened. He had surgery to put in a MediPort in his chest that will stay there for at least three years.… Continue Reading Day 1

Categories: Uncategorized Tags: acute lymphoblastic leukemia, bone marrow aspirate, chemotherapy, spinal fluid1 Comment

An Unexpected Journey

Laura Gilkey on January 2, 2015January 17, 2015

Well, we didn’t ring in the New Year exactly as planned. On New Year’s Eve, Benjamin the Brave was diagnosed with Leukemia. On New Year’s Day it was given a… Continue Reading An Unexpected Journey

Categories: Uncategorized Tags: acute lymphoblastic leukemia, bruising, ITPLeave a comment

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