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Benjamin the Brave

Read about our wonderful boy, and about the unique giving opportunity in his name through the Johns Hopkins All Children's Foundation.

Rainbow Stars

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Blog

Our daily journal chronicling Benjamin's leukemia diagnosis, his 772 days of treatment, his life, his death, and his unparalleled bravery.

Day 185

Laura Gilkey on July 6, 2015July 6, 2015

Tomorrow, Benjamin begins Delayed Intensification. This is a critical phase. It is designed to deliver the final big blow to any leukemia cells lurking beyond the microscope. The phase will last… Continue Reading Day 185

Categories: Uncategorized Tags: acute lymphoblastic leukemia, delayed intensification, dexamethasone, doxorubicin, intrathecal methotrexate, lumbar puncture, vincristine9 Comments

Day 184

Laura Gilkey on July 4, 2015July 4, 2015

Benjamin woke up this morning and said, with urgency,”My body doesn’t feel well. It feels just like the hospital for no reason!” Rather than running for the Kytril, I ran… Continue Reading Day 184

Categories: Uncategorized Tags: acute lymphoblastic leukemiaLeave a comment

Day 183

Laura Gilkey on July 3, 2015

Blessings continue to come in unexpected places. This morning, I got a hair cut, my first of the year. My sweet friend who owns the salon treated me to the… Continue Reading Day 183

Categories: Uncategorized Tags: acute lymphoblastic leukemia, delayed intensification1 Comment

Day 182

Laura Gilkey on July 2, 2015

It is amazing, the breadth and depth of emotions and experiences one day is capable of holding. I couldn’t sleep last night. After posting a perfectly sane and normal journal… Continue Reading Day 182

Categories: Uncategorized Tags: acute lymphoblastic leukemia, nausea, siblings3 Comments

Day 181

Laura Gilkey on July 1, 2015July 1, 2015

Six months of treatment in the books. Benjamin’s tummy hurt this morning, so I gave him Kytril. I second guessed myself all day. I realized he was sensitive to the… Continue Reading Day 181

Categories: Uncategorized Tags: acute lymphoblastic leukemia, kytril, nauseaLeave a comment

Day 180

Laura Gilkey on June 30, 2015

Late last night, I read an article about Gia, a little girl from our community who was diagnosed with Acute Lymphoblastic Leukemia. She began her treatment at All Children’s as… Continue Reading Day 180

Categories: Uncategorized Tags: acute lymphoblastic leukemia, bone marrow, siblings1 Comment

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