Skip to content
  • Benjamin the Brave
  • The Benjamin Gilkey Fund
  • Rainbow Stars
  • Acute Lymphoblastic Leukemia
  • CMMRD
  • Resources
  • Blog

Tag: relapse

Day 704/76

Laura Gilkey on December 5, 2016

All of today’s procedures went very smoothly. Benjamin is safe and sound, resting comfortably in his bed on the seventh floor. Benjamin’s scheduled 4am transfusion bumped his platelets from 3,000… Continue Reading Day 704/76

Categories: Uncategorized Tags: acute lymphoblastic leukemia, apheresis, beads of courage, blood transfusion, immunotherapy, inotuzumab, nausea, platelets, relapse16 Comments

Day 703/75

Laura Gilkey on December 4, 2016December 5, 2016

“The waiting is the hardest part” is a phrase I’ve used in this space before, a phrase parents on the 7th floor utter frequently. It’s true, there is fear in… Continue Reading Day 703/75

Categories: Uncategorized Tags: acute lymphoblastic leukemia, apheresis, blood transfusion, inotuzumab, platelets, relapse, siblings17 Comments

Day 702/74

Laura Gilkey on December 3, 2016December 4, 2016

Benjamin had another great day today. We deeply missed the other half of our foursome, but we enjoyed our hospital family, and soaked up a bit of Saturday sunshine in… Continue Reading Day 702/74

Categories: Uncategorized Tags: acute lymphoblastic leukemia, apheresis, inotuzumab, platelets, relapse, siblings, transfusion8 Comments

Day 701/73

Laura Gilkey on December 2, 2016December 3, 2016

Look at the boy in front of you.  Today I took this advice. This morning, when I heard the nurses come in for shift change, I didn’t jump up to… Continue Reading Day 701/73

Categories: Uncategorized Tags: absolute lymphocyte count (ALC), acute lymphoblastic leukemia, apheresis, platelets, relapse, transfusion9 Comments

Day 700/72

Laura Gilkey on December 1, 2016December 2, 2016

This morning’s labs were frankly terrifying. Benji’s white cell count and neutrophil count doubled again, and his blasts went up to 73%. His absolute blast cell count is so high.… Continue Reading Day 700/72

Categories: Uncategorized Tags: absolute lymphocyte count (ALC), acute lymphoblastic leukemia, apheresis, inotuzumab, platelets, relapse, transfusion11 Comments

Day 699/71

Laura Gilkey on November 30, 2016December 1, 2016

Benji and I slept soundly in our new bed, in our new room on the seventh floor. His labs were stable again this morning. His neutrophil and white blood cell… Continue Reading Day 699/71

Categories: Uncategorized Tags: absolute neutrophil count (ANC), acute lymphoblastic leukemia, apheresis, blood transfusion, family, platelets, relapse8 Comments

Posts navigation

Older posts
Newer posts

Sidebar

Footer Content