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Tag: immunotherapy

Day 676/48

Laura Gilkey on November 7, 2016November 8, 2016

I was hopeful this morning’s labs would show some reverse in yesterday’s trend, but they did not. The blasts in Benji’s blood increased a little more. His platelet transfusion was completely… Continue Reading Day 676/48

Categories: Uncategorized Tags: acute lymphoblastic leukemia, Blinatumomab, CAR-T, dexamethasone, immunotherapy, relapse10 Comments

Day 675/47

Laura Gilkey on November 6, 2016November 7, 2016

Benjamin’s labs this morning showed a huge increase in leukemia blasts. More than double, up to 52%. We haven’t seen a peripheral number that high since diagnosis. His platelets dropped… Continue Reading Day 675/47

Categories: Uncategorized Tags: acute lymphoblastic leukemia, bladder, Blinatumomab, CAR-T, immunotherapy, lasix, platelets, relapse, transfusion12 Comments

Day 672/44

Laura Gilkey on November 3, 2016November 4, 2016

Benji and I woke up at shift change, but he went back to sleep almost immediately. I stayed up for the gorgeous sunrise. When he woke for the day a… Continue Reading Day 672/44

Categories: Uncategorized Tags: acute lymphoblastic leukemia, Blinatumomab, fever, immunotherapy, relapse3 Comments

Day 671/43

Laura Gilkey on November 2, 2016November 3, 2016

Benji’s Blinatumomab began its slow drip at 5:12 this morning. Twenty hours in, and so far, so good. It seems like such a mundane phrase for such a big day.… Continue Reading Day 671/43

Categories: Uncategorized Tags: acute lymphoblastic leukemia, Blinatumomab, bone marrow transplant, Cytokines, dexamethasone, fever, immunotherapy, radiation, relapse, steroids4 Comments

Day 670/42

Laura Gilkey on November 1, 2016November 2, 2016

We’re all moved in up here on the 7th floor. I hope to get some sleep tonight, but my heart is beating too quickly for that to happen just yet. Benji’s… Continue Reading Day 670/42

Categories: Uncategorized Tags: acute lymphoblastic leukemia, Blinatumomab, immunotherapy, relapse9 Comments

Day 669/41

Laura Gilkey on October 31, 2016October 31, 2016

Michael woke us all up this morning to watch the sun rise over the Atlantic Ocean. I’m so thankful he did. I have tried for 669 days to put into… Continue Reading Day 669/41

Categories: Uncategorized Tags: acute lymphoblastic leukemia, Blinatumomab, family, friends, immunotherapy, relapse3 Comments

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