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Benjamin the Brave

Read about our wonderful boy, and about the unique giving opportunity in his name through the Johns Hopkins All Children's Foundation.

Rainbow Stars

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Blog

Our daily journal chronicling Benjamin's leukemia diagnosis, his 772 days of treatment, his life, his death, and his unparalleled bravery.

Day 227

Laura Gilkey on August 16, 2015

Benji’s counts continue to drop. There are more bruises today, and he’s still quite pale, but he feels terrific. He played with friends nearly all morning. He splashed and swam… Continue Reading Day 227

Categories: Uncategorized Tags: acute lymphoblastic leukemia, Erwinia, neutropenia, school, transfusion, vincristine1 Comment

Day 226

Laura Gilkey on August 15, 2015

Benji’s blood counts are dropping. It’s pretty incredible how easily we can see this now. He is pale, and when he scratches his arm, he leaves a trail of petichiae.… Continue Reading Day 226

Categories: Uncategorized Tags: acute lymphoblastic leukemia, blood counts, petichiaeLeave a comment

Day 225

Laura Gilkey on August 14, 2015

Michael had to work super late last night. He was setting up his makeshift drafting station at the dining room table, and the boys were winding down with a Beat… Continue Reading Day 225

Categories: Uncategorized Tags: acute lymphoblastic leukemiaLeave a comment

Day 224

Laura Gilkey on August 13, 2015August 13, 2015

It seemed like there was a sort of dissonance in the air right from the starting gate today. There was tension between Benji and me, between Banyan and Michael; even the… Continue Reading Day 224

Categories: Uncategorized Tags: acute lymhoblastic leukemia, cytarabine, discipline, Erwinia, vincristineLeave a comment

Day 223

Laura Gilkey on August 12, 2015August 12, 2015

Banyan went to another friend’s house bright and early this morning, and Benji and I headed north. There were light sun showers all along our way. As a result, we… Continue Reading Day 223

Categories: Uncategorized Tags: acute lymphoblastic leukemia, cytarabine, essential oils, hair lossLeave a comment

Day 222

Laura Gilkey on August 11, 2015August 11, 2015

Banyan promised me last night that he’d join me for a sunrise bridge walk, and he made good on his word. The thought of waking so early again any time… Continue Reading Day 222

Categories: Uncategorized Tags: acute lymphoblastic leukemia, asparaginase, asparagine, cytarabine, Erwinia2 Comments

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