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Benjamin the Brave

Read about our wonderful boy, and about the unique giving opportunity in his name through the Johns Hopkins All Children's Foundation.

Rainbow Stars

Request a Rainbow Star for a child with cancer, volunteer to make stars, or order a prismatic rainbow star to support research.

Blog

Our daily journal chronicling Benjamin's leukemia diagnosis, his 772 days of treatment, his life, his death, and his unparalleled bravery.

Day 305

Laura Gilkey on November 2, 2015

It was a new dawn and a new day today. The boys set their alarms super early to be able to go with their daddy to his breakfast meeting. Michael… Continue Reading Day 305

Categories: Uncategorized Tags: acute lymphoblastic leukemia, school2 Comments

Day 304

Laura Gilkey on November 1, 2015

Benjamin finished up his first steroid pulse of maintenance this morning. While the effects will last well into the week, I can say so far that Prednisone is much, much… Continue Reading Day 304

Categories: Uncategorized Tags: acute lymphoblastic leukemia, hunger, school, siblings, steroids1 Comment

Day 303

Laura Gilkey on October 31, 2015

Benji is sound asleep. I will wake him up when I finish writing so he can take his pills for the night. This happened last night as well; due to the debacle at… Continue Reading Day 303

Categories: Uncategorized Tags: acute lymphoblastic leukemia, hunger, sleep, steroidsLeave a comment

Day 302

Laura Gilkey on October 30, 2015October 30, 2015

The boys had no school today. I was hoping that would mean sleeping in a little, but it was not to be. Because Benji’s body endured the Methotrexate toxicity, every lumbar… Continue Reading Day 302

Categories: Uncategorized Tags: acute lymphoblastic leukemia, hunger, leucovorin, methotrexate toxicity, sleep, steroids, stress3 Comments

Day 301

Laura Gilkey on October 29, 2015

This gorgeous day was the first one that felt “normal” in quite a while. I began the day up on the Ringling Bridge with my sweet walking friend well before sunrise.… Continue Reading Day 301

Categories: Uncategorized Tags: acute lymphoblastic leukemia, school, siblings2 Comments

Day 300

Laura Gilkey on October 28, 2015

Benjamin wasn’t quite ready to return to school again this morning. Today, I think it was as much a case of nervousness as it was physical discomfort, though the amount of treatment he… Continue Reading Day 300

Categories: Uncategorized Tags: 6MP, acute lymphoblastic leukemia, hunger, prednisone, school, steroids5 Comments

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