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Benjamin the Brave

Read about our wonderful boy, and about the unique giving opportunity in his name through the Johns Hopkins All Children's Foundation.

Rainbow Stars

Request a Rainbow Star for a child with cancer, volunteer to make stars, or order a prismatic rainbow star to support research.

Blog

Our daily journal chronicling Benjamin's leukemia diagnosis, his 772 days of treatment, his life, his death, and his unparalleled bravery.

Day 311

Laura Gilkey on November 8, 2015

It was another sweet day spent with family. Benji had a little bit of nausea when he woke up, but it resolved with time and a bath. Once he got… Continue Reading Day 311

Categories: Uncategorized Tags: 6MP, acute lymphoblastic leukemia, liver, schoolLeave a comment

Day 310

Laura Gilkey on November 7, 2015November 8, 2015

Today is my birthday. Before I was even out of bed this morning, Michael and the boys gave me a cup of coffee, poems, and the most thoughtful gift: a… Continue Reading Day 310

Categories: Uncategorized Tags: acute lymphoblastic leukemia, baseball5 Comments

Day 309

Laura Gilkey on November 6, 2015

Benji’s sore throat yesterday evening manifested in the scariest of ways just after midnight. I woke up to an awful sound, and ran into the bathroom to find Benjamin gasping… Continue Reading Day 309

Categories: Uncategorized Tags: acute lymphoblastic leukemia, pentamidine, siblingsLeave a comment

Day 308

Laura Gilkey on November 5, 2015November 5, 2015

Benji woke up in much better spirits today. He had made his own breakfast by the time I returned from my sunrise bridge walk, and greeted me happily. Banyan got… Continue Reading Day 308

Categories: Uncategorized Tags: acute lymphoblastic leukemia, creatinine, methotrexate, pentamidine, school1 Comment

Day 307

Laura Gilkey on November 4, 2015

This was an emotionally intense day from start to finish. Benjamin was out of sorts when he woke up, and he said his tummy hurt. I noticed sweat on his upper lip… Continue Reading Day 307

Categories: Uncategorized Tags: acute lymphoblastic leukemia, creatinine, emotions, food, hunger, methotrexate, pentamidine, schoolLeave a comment

Day 306

Laura Gilkey on November 3, 2015November 3, 2015

I was thankful this morning for Daylight Savings Time. It meant my friend and I could bear witness to the sunrise again as we walked over the Ringling Bridge. It… Continue Reading Day 306

Categories: Uncategorized Tags: acute lymphoblastic leukemia, exhaustion, oral methotrexate1 Comment

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