Skip to content
  • Benjamin the Brave
  • The Benjamin Gilkey Fund
  • Rainbow Stars
  • Acute Lymphoblastic Leukemia
  • CMMRD
  • Resources
  • Blog
DONATE NOW TO LIFE SAVING RESEARCH

Benjamin the Brave

Read about our wonderful boy, and about the unique giving opportunity in his name through the Johns Hopkins All Children's Foundation.

Rainbow Stars

Request a Rainbow Star for a child with cancer, volunteer to make stars, or order a prismatic rainbow star to support research.

Blog

Our daily journal chronicling Benjamin's leukemia diagnosis, his 772 days of treatment, his life, his death, and his unparalleled bravery.

Day 335

Laura Gilkey on December 2, 2015December 2, 2015

Benjamin woke with another tummy ache today. He knew he had to go to the dentist mid-morning and begged to stay home from school until at least after the appointment. Michael… Continue Reading Day 335

Categories: Uncategorized Tags: acute lymphoblastic leukemia, bruises, platelets1 Comment

Day 334

Laura Gilkey on December 1, 2015December 2, 2015

I woke up with the 5:30am alarm that sounds every Tuesday and Thursday to send me to the Ringling Bridge with my dear friend. For the first time in a… Continue Reading Day 334

Categories: Uncategorized Tags: acute lymphoblastic leukemia, long term maintenance, methotrexate2 Comments

Day 333

Laura Gilkey on December 1, 2015December 1, 2015

Sure there were pictures in focus of the boys finding their perfect tree. But this one captures the joy and the energy inside their perfect bodies. This one captures a… Continue Reading Day 333

Categories: Uncategorized Tags: acute lymphoblastic leukemia, antibiotic, glutamine, methotrexate, milk thistle, steroids1 Comment

Day 332

Laura Gilkey on November 30, 2015

We are home, safe and sound. We left much later than we had planned, but it was well worth it; we all got to enjoy one last epic trail ride through… Continue Reading Day 332

Categories: Uncategorized Tags: acute lymphoblastic leukemia, steroids1 Comment

Day 331

Laura Gilkey on November 28, 2015November 29, 2015

It’s our last night in Georgia for a while. The fire is dying down, the boys are heading to bed, and we can all look back on this trip of… Continue Reading Day 331

Categories: Uncategorized Tags: acute lymphoblastic leukemia, hunger, steroids1 Comment

Day 330

Laura Gilkey on November 28, 2015November 29, 2015

After yesterday’s feast, at about 1:30pm, I gave Benji his first rescue dose of Leucovorin that followed Tuesday’s lumbar puncture. His second was at 1:30am. I set my alarm to… Continue Reading Day 330

Categories: Uncategorized Tags: acute lymphoblastic leukemia, leucovorin, lumbar puncture, siblingsLeave a comment

Posts navigation

Older posts
Newer posts

Sidebar

Upcoming Events

There are no upcoming events.

Subscribe to our Email List

Subscribe

* indicates required

Search

Footer Content