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Benjamin the Brave

Read about our wonderful boy, and about the unique giving opportunity in his name through the Johns Hopkins All Children's Foundation.

Rainbow Stars

Request a Rainbow Star for a child with cancer, volunteer to make stars, or order a prismatic rainbow star to support research.

Blog

Our daily journal chronicling Benjamin's leukemia diagnosis, his 772 days of treatment, his life, his death, and his unparalleled bravery.

Day 401

Laura Gilkey on February 6, 2016

It was a perfectly normal Saturday. We had a nice breakfast, watched Banyan dominate on defense at his flag football game, stocked the house with healthy groceries for the week,… Continue Reading Day 401

Categories: Uncategorized Tags: acute lymphoblastic leukemia, cafe-au-lait spots2 Comments

Day 400

Laura Gilkey on February 5, 2016

Day 400. True to form, I will report that in 400 days, Benjamin has had: • 1 surgery to place medi-port • 3 bone marrow aspirates • 16 lumbar punctures… Continue Reading Day 400

Categories: Uncategorized Tags: acute lymphoblastic leukemia, school2 Comments

Day 399

Laura Gilkey on February 4, 2016

Apparently it’s World Cancer Day. (Not that I need a day of awareness to bring this subject to the forefront of my attention.) Interestingly, on this day, I spoke to… Continue Reading Day 399

Categories: Uncategorized Tags: acute lymphoblastic leukemia, fundraising, rainbow stars2 Comments

Day 398

Laura Gilkey on February 3, 2016February 3, 2016

Benjamin woke up not feeling very well, but got ready for school without complaint. I told him he could stay home if he felt like he needed a day of… Continue Reading Day 398

Categories: Uncategorized Tags: acute lymphoblastic leukemia, ewing sarcoma1 Comment

Day 397

Laura Gilkey on February 2, 2016

Well, I did it. I walked back into my radio studio and talked to my dear friend for an hour about Benjamin’s diagnosis and treatment. My heart was pounding and… Continue Reading Day 397

Categories: Uncategorized Tags: acute lymphoblastic leukemia4 Comments

Day 396

Laura Gilkey on February 1, 2016

We were all up well before the sun this morning. Michael hosted an early breakfast meeting at work, and we both needed to be there, so we brought the boys… Continue Reading Day 396

Categories: Uncategorized Tags: acute lymphoblastic leukemia, immune system, PTSD, school, virus, work1 Comment

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