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Benjamin the Brave

Read about our wonderful boy, and about the unique giving opportunity in his name through the Johns Hopkins All Children's Foundation.

Rainbow Stars

Request a Rainbow Star for a child with cancer, volunteer to make stars, or order a prismatic rainbow star to support research.

Blog

Our daily journal chronicling Benjamin's leukemia diagnosis, his 772 days of treatment, his life, his death, and his unparalleled bravery.

Day 407

Laura Gilkey on February 12, 2016

The rainbow star project went to the next level today. After a lovely bridge walk with my friend, a sweet mama in our community picked up twelve star making “kits”… Continue Reading Day 407

Categories: Uncategorized Tags: acute lymphoblastic leukemia, rainbow stars1 Comment

Day 406

Laura Gilkey on February 11, 2016February 12, 2016

Today was a big day. A healing day. This morning as I was getting the boys ready for school, I was having trouble staying present. My mind was drifting forward… Continue Reading Day 406

Categories: Uncategorized Tags: acute lymphoblastic leukemia, methotrexate toxicity, rainbow stars, siblings3 Comments

Day 405

Laura Gilkey on February 10, 2016February 11, 2016

Benjamin didn’t feel well when he woke up this morning. He couldn’t describe to me why, exactly. He just didn’t feel well, and I could tell. He wasn’t exhibiting any… Continue Reading Day 405

Categories: Uncategorized Tags: acute lymphoblastic leukemia, methotrexate toxicity, rainbow stars, school, siblings, writing3 Comments

Day 404

Laura Gilkey on February 9, 2016February 10, 2016

Today was an oddly grounding day. I put my feet on the floor after turning off my alarm at 5:30am. I took a moment to get my bearings. I mentally… Continue Reading Day 404

Categories: Uncategorized Tags: acute lymphoblastic leukemia, cafe-au-lait spots, chemotherapy, methotrexate toxicity, school, siblingsLeave a comment

Day 403

Laura Gilkey on February 8, 2016February 8, 2016

I’m not sure letting the boys stay up to watch the entire Super Bowl was my best move. Everyone was really tired this morning. When I walked Benjamin to class,… Continue Reading Day 403

Categories: Uncategorized Tags: acute lymphoblastic leukemia, balance, exercise, work1 Comment

Day 402

Laura Gilkey on February 7, 2016

I followed up this morning with the families newly absorbing their cancer diagnoses. I recognize their common thirst for knowledge, their wall of strength, their desire to crumble. I want… Continue Reading Day 402

Categories: Uncategorized Tags: acute lymphoblastic leukemia, cancer, siblings1 Comment

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