Today felt a lot more manageable than yesterday did. I spoke with the clinic nurse this morning about Benjamin’s toe, and she asked a lot of thoughtful questions. She feels we… Continue Reading Day 503
Day 503
on on Day 502
on When I’m tired, fear is harder to fight. I know this is true tonight. The boys both had great days at school. Benjamin had a field trip to our local… Continue Reading Day 502
Day 501
on We are all toast. Tired after a full day of work, school, baseball, football, homework, Monday. Benjamin didn’t feel well this morning but pulled it together for school; he didn’t… Continue Reading Day 501
Day 500
on Day 500. My God, that sounds like such a huge number. In 500 days, Benji has had: • 1 surgery to place his medi-port • 3 bone marrow aspirates • 18 lumbar… Continue Reading Day 500
Day 499
on I slept in a little today, and woke up to the smell of coffee (thank you Michael) and to sad news. My online friend who called in hospice for her… Continue Reading Day 499
Day 498
on We are all home together for the first time since very early this morning, reveling in the greatness that is Friday. Benji’s steroid pulse ends Sunday morning. It’s been a… Continue Reading Day 498