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Benjamin the Brave

Read about our wonderful boy, and about the unique giving opportunity in his name through the Johns Hopkins All Children's Foundation.

Rainbow Stars

Request a Rainbow Star for a child with cancer, volunteer to make stars, or order a prismatic rainbow star to support research.

Blog

Our daily journal chronicling Benjamin's leukemia diagnosis, his 772 days of treatment, his life, his death, and his unparalleled bravery.

Day 509

Laura Gilkey on May 24, 2016

The sunrise over the bridge this morning seems like a very long time ago. It’s been a long, full day. Benjamin took his Methotrexate much later than I would have… Continue Reading Day 509

Categories: Uncategorized Tags: 6MP, acute lymphoblastic leukemia, methotrexate, sleep1 Comment

Day 508

Laura Gilkey on May 23, 2016May 23, 2016

I stayed up last night trying to catch up on rainbow stars. I have a small surplus instead of a wait list, so I posted about the project in my… Continue Reading Day 508

Categories: Uncategorized Tags: acute lymphoblastic leukemia, fear, steroidsLeave a comment

Day 507

Laura Gilkey on May 22, 2016

Sweet Sunday. We picked up the boys from Kathy and Gana late this morning. They were having a wonderful time in the pool and had a terrific time last night–dinner,… Continue Reading Day 507

Categories: Uncategorized Tags: acute lymphoblastic leukemia, family, steroidsLeave a comment

Day 506

Laura Gilkey on May 22, 2016May 22, 2016

It was a beautiful Saturday. This morning Michael had a big meeting up in Tampa, and I was flying solo getting the boys ready for sports outings and birthday parties and… Continue Reading Day 506

Categories: Uncategorized Tags: acute lymphoblastic leukemia, family, siblings, steroidsLeave a comment

Day 505

Laura Gilkey on May 20, 2016

The effects of last week’s steroid pulse still linger. I brought both boys lunch today, and when I saw Benji’s teacher, she gave me “the look” that said he’d been… Continue Reading Day 505

Categories: Uncategorized Tags: acute lymphoblastic leukemia, hair, steroidsLeave a comment

Day 504

Laura Gilkey on May 19, 2016May 19, 2016

Racquetball is the perfect sport for a child in his post-steroid week. Benjamin and I played for a solid hour tonight while Banyan was at football practice, and the kid did… Continue Reading Day 504

Categories: Uncategorized Tags: acute lymphoblastic leukemia, research, steroids1 Comment

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