It sure was nice to make breakfast in my own kitchen this morning. Benjamin woke up feeling strong. He was hungry and ready for action. He was excited to eat, but… Continue Reading Day 737/109
Day 737/109
on Tag: home
on Day 735/107
on We are home. Everything feels pretty overwhelming right now. So many emotions today and so much uncertainty ahead. Home is the word and the feeling and the place I am… Continue Reading Day 735/107
Day 729/101
on We are still waiting for the final word from CHOP. I checked my email about a hundred thousand times today. Now that the work week has passed, we are prepared… Continue Reading Day 729/101
Day 723/95
on We. Are. Home. Until Monday morning, I will relish every sound and every smell and every breath in this house. The decision to come home was very much a last-minute one.… Continue Reading Day 723/95
Day 717/89
on Today was a very good day. It didn’t start that way. We were up before 5am with Benjamin in great abdominal pain. He asked for heat packs and cold packs… Continue Reading Day 717/89