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Benjamin the Brave

Read about our wonderful boy, and about the unique giving opportunity in his name through the Johns Hopkins All Children's Foundation.

Rainbow Stars

Request a Rainbow Star for a child with cancer, volunteer to make stars, or order a prismatic rainbow star to support research.

Blog

Our daily journal chronicling Benjamin's leukemia diagnosis, his 772 days of treatment, his life, his death, and his unparalleled bravery.

Day 221

Laura Gilkey on August 10, 2015August 10, 2015

I woke up with the sun this morning, images of Banyan’s beautiful face in my mind. I let Benji sleep until the last possible minute, since he couldn’t have anything… Continue Reading Day 221

Categories: Uncategorized Tags: acute lymphoblastic leukemia, cytarabine, intrathecal methotrexate, kytril, lumbar puncture, siblings3 Comments

Day 220

Laura Gilkey on August 9, 2015August 10, 2015

Today, while Michael and Banyan were taking in the beauty of Wisconsin’s Peninsula State Park, Benji and I took in a baseball game. When we first met Cody, Benji’s friend… Continue Reading Day 220

Categories: Uncategorized Tags: acute lymphoblastic leukemia, cytarabine, delayed intensification, intrathecal methotrexate, kytril, lumbar puncture, siblings3 Comments

Day 219

Laura Gilkey on August 8, 2015

While Michael and Banyan are taking a road trip in Wisconsin, leukemia is taking a little road trip too. Nearly all of its symptoms are on vacation this weekend. Benjamin… Continue Reading Day 219

Categories: Uncategorized Tags: acute lymphoblastic leukemiaLeave a comment

Day 218

Laura Gilkey on August 7, 2015August 7, 2015

Michael left before dawn to catch his plane to Wisconsin to retrieve Banyan from Camp Highlands. Benji and I saw him off and returned to bed for an extra hour… Continue Reading Day 218

Categories: Uncategorized Tags: acute lymphoblastic leukemiaLeave a comment

Day 217

Laura Gilkey on August 6, 2015August 7, 2015

Today was Benjamin’s last day at All Children’s this week. I gave him Kytril with breakfast, but only preventatively. He wasn’t nauseous. We had a spring in our step as we… Continue Reading Day 217

Categories: Uncategorized Tags: absolute neutrophil count (ANC), acute lymphoblastic leukemia, cytarabine, kytril, nausea1 Comment

Day 216

Laura Gilkey on August 5, 2015

Benjamin woke up in a fantastic mood. He was calm, sweet, and optimistic. He was not upset about another trip to the hospital. His tummy was tender, so I gave… Continue Reading Day 216

Categories: Uncategorized Tags: acute lymphoblastic leukemia, chemotherapy, cytarabine, lumbar puncture, nausea2 Comments

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