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Benjamin the Brave

Read about our wonderful boy, and about the unique giving opportunity in his name through the Johns Hopkins All Children's Foundation.

Rainbow Stars

Request a Rainbow Star for a child with cancer, volunteer to make stars, or order a prismatic rainbow star to support research.

Blog

Our daily journal chronicling Benjamin's leukemia diagnosis, his 772 days of treatment, his life, his death, and his unparalleled bravery.

Day 251

Laura Gilkey on September 9, 2015

Benji was up and dressed for school early this morning. He was in a good mood and ready to go. He made himself an omelette, and then his tummy hurt–which… Continue Reading Day 251

Categories: Uncategorized Tags: acute lymphoblastic leukemia, Erwinia, frontline, hospital homebound, kytril, nausea, school, scopolamineLeave a comment

Day 250

Laura Gilkey on September 8, 2015September 9, 2015

It was a stormy morning on the Ringling Bridge as I walked with my friend at sunrise. We avoided the rain, but the skies looked mysterious all around us. The… Continue Reading Day 250

Categories: Uncategorized Tags: acute lymphoblastic leukemia, liver, pancreas, school1 Comment

Day 249

Laura Gilkey on September 7, 2015

We all worked on this Labor Day. Michael has several projects to present next week, Banyan and Benjamin finished their weekend homework, and I caught up on laundry, groceries, and… Continue Reading Day 249

Categories: Uncategorized Tags: acute lymphoblastic leukemia, Erwinia, methotrexateLeave a comment

Day 248

Laura Gilkey on September 6, 2015September 6, 2015

Banyan joined Benji and me this morning as we traveled to All Children’s Hospital. The parking garage was much roomier, and there was no hustle and bustle as we headed… Continue Reading Day 248

Categories: Uncategorized Tags: acute lymphoblastic leukemia, Erwinia, kytril, marinol, nauseaLeave a comment

Day 247

Laura Gilkey on September 6, 2015September 6, 2015

Benji woke me up this morning, clutching his tummy and asking for Kytril. I gave it to him with water and assisted as he fixed himself some scrambled eggs. He… Continue Reading Day 247

Categories: Uncategorized Tags: acute lymphoblastic leukemia2 Comments

Day 246

Laura Gilkey on September 4, 2015

Benji woke up this morning saying he “hurt all over.” He was teary, and down, and I could tell right away that two hours of school this morning was a… Continue Reading Day 246

Categories: Uncategorized Tags: acute lymphoblastic leukemia, ErwiniaLeave a comment

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