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Benjamin the Brave

Read about our wonderful boy, and about the unique giving opportunity in his name through the Johns Hopkins All Children's Foundation.

Rainbow Stars

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Blog

Our daily journal chronicling Benjamin's leukemia diagnosis, his 772 days of treatment, his life, his death, and his unparalleled bravery.

Day 377

Laura Gilkey on January 13, 2016

This hasn’t been my best day. As the day progressed, I found it harder to reclaim my gratitude. As I found it harder to reclaim my gratitude, my guilt grew.… Continue Reading Day 377

Categories: Uncategorized Tags: acute lymphoblastic leukemia, fear, long term maintenance2 Comments

Day 376

Laura Gilkey on January 12, 2016January 12, 2016

I woke up feeling grateful. Tired, but grateful. I was glad to have the weight of The Letter off my chest, and glad to begin my day on the Ringling… Continue Reading Day 376

Categories: Uncategorized Tags: acute lymphoblastic leukemia, detoxification, hospital, methotrexate3 Comments

Day 375

Laura Gilkey on January 11, 2016January 11, 2016

Yesterday was such a solidly restorative day. I woke up feeling accomplished, laundry done, lunches packed, broth made, pill box filled. I decided it was time to go to back… Continue Reading Day 375

Categories: Uncategorized Tags: acute lymphoblastic leukemia, bruises, bruising, methotrexate, methotrexate toxicity, Stevens Johnson Syndrome2 Comments

Day 374

Laura Gilkey on January 10, 2016

A perfect Sunday, full of ritual, health, strength and love. I took the boys to the gym this morning for an orientation on the workout and weight machines with a personal… Continue Reading Day 374

Categories: Uncategorized Tags: acute lymphoblastic leukemia, bacteria, exercise, fermentation, gut flora, meal plan2 Comments

Day 373

Laura Gilkey on January 9, 2016January 10, 2016

The day after making final our decision to end our childbearing years, I have been surrounded by creative, loving, healthful energy. I am so grateful for it. I went to… Continue Reading Day 373

Categories: Uncategorized Tags: acute lymphoblastic leukemiaLeave a comment

Day 372

Laura Gilkey on January 8, 2016

I still haven’t hit “send.” Why is that button so hard to press? I have edited, and edited, and edited some more. I have softened the tone of the letter… Continue Reading Day 372

Categories: Uncategorized1 Comment

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