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Benjamin the Brave

Read about our wonderful boy, and about the unique giving opportunity in his name through the Johns Hopkins All Children's Foundation.

Rainbow Stars

Request a Rainbow Star for a child with cancer, volunteer to make stars, or order a prismatic rainbow star to support research.

Blog

Our daily journal chronicling Benjamin's leukemia diagnosis, his 772 days of treatment, his life, his death, and his unparalleled bravery.

Day 389

Laura Gilkey on January 25, 2016

Monday. Back to reality. It’s nice that reality means school, work, chores, errands, bills, cleaning. Not a trip over the Skyway, or sitting at the bathtub all night. Part of… Continue Reading Day 389

Categories: Uncategorized Tags: acute lymphoblastic leukemia, hunger, mood swings, prednisone, school, steroids8 Comments

Day 388

Laura Gilkey on January 24, 2016

We powered through the highways last night, all the way home and straight on ’til morning, with Michael and me taking shifts and consuming unhealthy amounts of gas station coffee.… Continue Reading Day 388

Categories: Uncategorized Tags: acute lymphoblastic leukemia, hunger, prednisone, steroids2 Comments

Day 387

Laura Gilkey on January 24, 2016

And just like that, we’re homeward bound. We had a lovely day in the snow. A famous PawPaw cream of wheat breakfast, a snow labyrinth, snowball fights, time spent with… Continue Reading Day 387

Categories: Uncategorized Tags: acute lymphoblastic leukemia, prednisone, steroidsLeave a comment

Day 386

Laura Gilkey on January 22, 2016

We are safely here at my daddy’s house in northern Alabama. Each January, we make this journey (except last January, of course). Each January, we wish for snow. It’s only… Continue Reading Day 386

Categories: Uncategorized Tags: acute lymphoblastic leukemia, travelLeave a comment

Day 385

Laura Gilkey on January 21, 2016

We are en route to chilly northern Alabama, and everyone is happy and relatively healthy. Benji and I took one more morning “off,” just to be sure; he still felt… Continue Reading Day 385

Categories: Uncategorized Tags: acute lymphoblastic leukemia, immune system, leucovorin2 Comments

Day 384

Laura Gilkey on January 20, 2016

Benjamin stayed home from school today. He never reached fever status and I didn’t have to call the clinic, but he was still super congested and he just didn’t feel… Continue Reading Day 384

Categories: Uncategorized Tags: acute lymphoblastic leukemia, leucovorin, methotrexate, pharmacy, writing1 Comment

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