Skip to content
  • Benjamin the Brave
  • The Benjamin Gilkey Fund
  • Rainbow Stars
  • Acute Lymphoblastic Leukemia
  • CMMRD
  • Resources
  • Blog
DONATE NOW TO LIFE SAVING RESEARCH

Benjamin the Brave

Read about our wonderful boy, and about the unique giving opportunity in his name through the Johns Hopkins All Children's Foundation.

Rainbow Stars

Request a Rainbow Star for a child with cancer, volunteer to make stars, or order a prismatic rainbow star to support research.

Blog

Our daily journal chronicling Benjamin's leukemia diagnosis, his 772 days of treatment, his life, his death, and his unparalleled bravery.

Day 11

Laura Gilkey on January 12, 2015January 17, 2015

Our daily chemotherapy steroid, dexamethasone, is really revving up Benjamin’s appetite. It’s a far cry from where we were a few days ago in the hospital. This morning, before Banyan… Continue Reading Day 11

Categories: Uncategorized Tags: acute lymphoblastic leukemia, dexamethasone, homeschooling, hospital homebound, meal train, new normalLeave a comment

Day 10

Laura Gilkey on January 11, 2015January 21, 2015

Another positive day for Benjamin the Brave. I’m not so sure I can say the same for his mama. For whatever reason, my emotions got the better of me today.… Continue Reading Day 10

Categories: Uncategorized Tags: acute lymphoblastic leukemia, bone broth, caregiving, hospital homebound, nutritionLeave a comment

Day 9

Laura Gilkey on January 10, 2015January 17, 2015

We are a quarter of the way through the induction phase of treatment. That is crazy. Benjamin’s first full day at home was nice, and mostly peaceful. I slept like… Continue Reading Day 9

Categories: Uncategorized Tags: acute lymphoblastic leukemia, dexamethasone, meal trainLeave a comment

Day 8

Laura Gilkey on January 9, 2015January 17, 2015

We are home. HOME. The morning started early, with a transfusion of packed red blood cells at around 5am (Benji’s hemoglobin count continued to drop last night). With that boost,… Continue Reading Day 8

Categories: Uncategorized Tags: acute lymphoblastic leukemia, blood transfustion, chemotherapy, vincristineLeave a comment

Day 7

Laura Gilkey on January 8, 2015January 17, 2015

Day 7 of treatment. Contemplating a lot tonight on what a difference a week makes. If all goes well, tonight will be the last night we spend in this room.… Continue Reading Day 7

Categories: Uncategorized Tags: acute lymphoblastic leukemia, intrathecal chemotherapy, leukemic mouthwash, plateletsLeave a comment

Day 6

Laura Gilkey on January 7, 2015January 17, 2015

Four words I never thought I’d say: HOORAY for Leukemic Mouthwash! This morning the imaginary “cracks” in Benji’s mouth felt worse–kind of a repeat of yesterday, but intensified by hunger,… Continue Reading Day 6

Categories: Uncategorized Tags: acute lymphoblastic leukemia, chemotherapy, informed consent, leukemic mouthwash, vincristineLeave a comment

Posts navigation

Older posts
Newer posts

Sidebar

Upcoming Events

Notice
There are no upcoming events.

Subscribe to our Email List

Subscribe

* indicates required

Search

Footer Content