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Benjamin the Brave

Read about our wonderful boy, and about the unique giving opportunity in his name through the Johns Hopkins All Children's Foundation.

Rainbow Stars

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Blog

Our daily journal chronicling Benjamin's leukemia diagnosis, his 772 days of treatment, his life, his death, and his unparalleled bravery.

Day 71

Laura Gilkey on March 13, 2015

Vacay.

Categories: Uncategorized Tags: acute lymphoblastic leukemia4 Comments

Day 70

Laura Gilkey on March 12, 2015

This face. What more is there to say? Well, there’s one thing. This beach getaway is a gift. It’s a gift of the most magnanimous proportions. We walked into our… Continue Reading Day 70

Categories: Uncategorized Tags: acute lymphoblastic leukemia4 Comments

Day 69

Laura Gilkey on March 11, 2015March 11, 2015

Benji woke up with intense tummy pain. He asked for Zofran with such urgency that I got out of bed running. He took it, and it worked almost immediately.  Then… Continue Reading Day 69

Categories: Uncategorized Tags: acute lymphoblastic leukemia, homeschool, hospital homebound4 Comments

Day 68

Laura Gilkey on March 10, 2015March 11, 2015

Sleep came easy and stayed late this morning. Benjamin had a tummy ache that came and went, but otherwise he felt strong, as usual. We dropped Banyan off at a… Continue Reading Day 68

Categories: Uncategorized Tags: acute lymphoblastic leukemia, hospital homebound, mucositis4 Comments

Day 67

Laura Gilkey on March 9, 2015March 9, 2015

We overslept this morning. A combination of Benjamin’s restless night, Daylight Savings Time, and a late viewing of Shawshank Redemption conspired against us. We still had plenty of time to… Continue Reading Day 67

Categories: Uncategorized Tags: absolute neutrophil count, acute lymhoblastic leukemia, consolidation, Erwinia5 Comments

Day 66

Laura Gilkey on March 8, 2015

Today was full of so many emotions. Overwhelming gratitude was at the top of the list. Michael’s mama and sister brought over a phenomenal brunch this morning, complete with more… Continue Reading Day 66

Categories: Uncategorized Tags: acute lymphoblastic leukemia, consolidation3 Comments

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