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Benjamin the Brave

Read about our wonderful boy, and about the unique giving opportunity in his name through the Johns Hopkins All Children's Foundation.

Rainbow Stars

Request a Rainbow Star for a child with cancer, volunteer to make stars, or order a prismatic rainbow star to support research.

Blog

Our daily journal chronicling Benjamin's leukemia diagnosis, his 772 days of treatment, his life, his death, and his unparalleled bravery.

Day 89

Laura Gilkey on March 31, 2015March 31, 2015

Five bald eagles on the way over the bridge this morning. FIVE. A good sign. Benjamin’s Zofran is back on track. He slept well last night and didn’t need the… Continue Reading Day 89

Categories: Uncategorized Tags: acute lymphoblastic leukemia, cytarabine, hopecam8 Comments

Day 88

Laura Gilkey on March 30, 2015March 31, 2015

We woke up well before the sun this morning. Michael took Banyan with him to his Monday breakfast meeting before dropping him off at school, and Benji grabbed a favorite… Continue Reading Day 88

Categories: Uncategorized Tags: absolute neutrophil count, acute lymphoblastic leukemia, nausea5 Comments

Day 87

Laura Gilkey on March 29, 2015

Sundays are precious days. Sundays are for sleeping in and for second pots of coffee. For Sunday brunch and family dinner. For cheese grits. For creativity. For visiting with neighbors.… Continue Reading Day 87

Categories: Uncategorized Tags: acute lymphoblastic leukemia, cytarabine6 Comments

Day 86

Laura Gilkey on March 28, 2015March 28, 2015

I’ve read perspectives from other mothers who candidly express feeling like they have little left to give to their other children after investing so much time and energy into the care of… Continue Reading Day 86

Categories: Uncategorized Tags: acute lymphoblastic leukemia, siblings8 Comments

Day 85

Laura Gilkey on March 27, 2015March 27, 2015

It was a good day. It was a great day. When Benjamin feels well, it makes all the difference in the world. Benjamin had a tummyache this morning, but we caught it… Continue Reading Day 85

Categories: Uncategorized Tags: absolute neutrophil count, acute lymphoblastic leukemia, ANC, cytarabine, homeschool, hopecam, school4 Comments

Day 84

Laura Gilkey on March 26, 2015March 27, 2015

I reunited with the Ringling Bridge and my walking friend this morning before the sun rose. It’s truly like hitting a reset button on my perspective. Going into today, I… Continue Reading Day 84

Categories: Uncategorized Tags: 6MP, acute lymphoblastic leukemia, cytarabine7 Comments

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