Skip to content
  • Benjamin the Brave
  • The Benjamin Gilkey Fund
  • Rainbow Stars
  • Acute Lymphoblastic Leukemia
  • CMMRD
  • Resources
  • Blog

Author: Laura Gilkey

Day 11

Laura Gilkey on January 12, 2015January 17, 2015

Our daily chemotherapy steroid, dexamethasone, is really revving up Benjamin’s appetite. It’s a far cry from where we were a few days ago in the hospital. This morning, before Banyan… Continue Reading Day 11

Categories: Uncategorized Tags: acute lymphoblastic leukemia, dexamethasone, homeschooling, hospital homebound, meal train, new normalLeave a comment

Day 10

Laura Gilkey on January 11, 2015January 21, 2015

Another positive day for Benjamin the Brave. I’m not so sure I can say the same for his mama. For whatever reason, my emotions got the better of me today.… Continue Reading Day 10

Categories: Uncategorized Tags: acute lymphoblastic leukemia, bone broth, caregiving, hospital homebound, nutritionLeave a comment

Day 9

Laura Gilkey on January 10, 2015January 17, 2015

We are a quarter of the way through the induction phase of treatment. That is crazy. Benjamin’s first full day at home was nice, and mostly peaceful. I slept like… Continue Reading Day 9

Categories: Uncategorized Tags: acute lymphoblastic leukemia, dexamethasone, meal trainLeave a comment

Day 8

Laura Gilkey on January 9, 2015January 17, 2015

We are home. HOME. The morning started early, with a transfusion of packed red blood cells at around 5am (Benji’s hemoglobin count continued to drop last night). With that boost,… Continue Reading Day 8

Categories: Uncategorized Tags: acute lymphoblastic leukemia, blood transfustion, chemotherapy, vincristineLeave a comment

Day 7

Laura Gilkey on January 8, 2015January 17, 2015

Day 7 of treatment. Contemplating a lot tonight on what a difference a week makes. If all goes well, tonight will be the last night we spend in this room.… Continue Reading Day 7

Categories: Uncategorized Tags: acute lymphoblastic leukemia, intrathecal chemotherapy, leukemic mouthwash, plateletsLeave a comment

Day 6

Laura Gilkey on January 7, 2015January 17, 2015

Four words I never thought I’d say: HOORAY for Leukemic Mouthwash! This morning the imaginary “cracks” in Benji’s mouth felt worse–kind of a repeat of yesterday, but intensified by hunger,… Continue Reading Day 6

Categories: Uncategorized Tags: acute lymphoblastic leukemia, chemotherapy, informed consent, leukemic mouthwash, vincristineLeave a comment

Posts navigation

Older posts
Newer posts

Sidebar

Footer Content