It was a super windy Saturday here today. It seemed that every gust of wind carried with it a new emotion. I’m thankful to be back here to sort it… Continue Reading Day 23
Author: Laura Gilkey
Day 22
Friday. A day that used to find us looking forward to happy hour now finds us driving over the Sunshine Skyway with numbing cream, Glad Press ‘n’ Seal, and a new… Continue Reading Day 22
Day 21
I absorbed some of Benjamin’s school self-consciousness this morning as I walked onto his campus for the first time since his diagnosis. There have been so many acts of kindness… Continue Reading Day 21
Day 20
The lesson today is one I should know by now. There are no “patterns.” One day at a time. Benjamin was super tired today. Two naps by 1pm. The irritability… Continue Reading Day 20
Day 19
Today was a lot easier than yesterday. Benjamin was still quite hungry; he woke up at 7, and by 8, he’d eaten a sushi roll, an English muffin pizza, two… Continue Reading Day 19
Day 18
Day 18. Halfway through the Induction Phase. That means we have ten more days of dexamethasone during this stage of Benjamin’s treatment. In a way, it’s like a light at… Continue Reading Day 18