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Tag: palliative care

Day 769/141

Laura Gilkey on February 8, 2017May 10, 2017

Since Benjamin’s diagnosis, we have asked for guidance to make decisions for his highest good. Today we were guided in a direction we did not expect, but one that could… Continue Reading Day 769/141

Categories: Uncategorized Tags: acute lymphoblastic leukemia, baths, fever, home, hospice, hospital, nurses, pain, palliative care, relapse, transfusions82 Comments

Day 767/139

Laura Gilkey on February 6, 2017May 10, 2017

Benjamin continues to do his brave work, and we continue to make the best decisions we can for him. This has always been true, of course, but we are accustomed… Continue Reading Day 767/139

Categories: Uncategorized Tags: acute lymphoblastic leukemia, blood transfusions, death, hemoglobin, home, hospice, palliative care, platelets, relapse, steroids67 Comments

Day 766/138

Laura Gilkey on February 5, 2017May 10, 2017

The sky at shift change was a thick, foggy red. This is is a strange and confusing time. I am trying to accept all phases of this slow and peaceful… Continue Reading Day 766/138

Categories: Uncategorized Tags: acute lymphoblastic leukemia, death, home, hospice, pain, palliative care, platelets, relapse, research60 Comments

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