Skip to content
  • Benjamin the Brave
  • The Benjamin Gilkey Fund
  • Rainbow Stars
  • Acute Lymphoblastic Leukemia
  • CMMRD
  • Resources
  • Blog

Tag: mucositis

Day 284

Laura Gilkey on October 12, 2015

Benji’s little wet cough persisted in the night. He complied with my requests to inhale deeply and get his coughs out, and by the morning his chest sounded completely clear,… Continue Reading Day 284

Categories: Uncategorized Tags: absolute neutrophil count (ANC), acute lymphoblastic leukemia, acute renal injury, methotrexate, mucositis, Stevens Johnson Syndrome4 Comments

Day 282

Laura Gilkey on October 10, 2015October 10, 2015

This roller coaster hasn’t come to a halt just yet. My intentions are being refocused tonight. I cannot grow complacent. It isn’t enough to just wait to be discharged. We… Continue Reading Day 282

Categories: Uncategorized Tags: acute lymphoblastic leukemia, creatinine, fever, mucositis, nausea, platelets, Stevens Johnson Syndrome3 Comments

Day 281

Laura Gilkey on October 9, 2015October 9, 2015

We had a very sleepy morning here on the seventh floor. We both slept well last night but woke up frequently. Our night nurse was less experienced than her colleagues,… Continue Reading Day 281

Categories: Uncategorized Tags: absolute neutrophil count (ANC), acute lymphoblastic leukemia, acute renal injury, creatinine, liver, mucositis, Stevens Johnson Syndrome3 Comments

Day 280

Laura Gilkey on October 8, 2015October 8, 2015

Benji and I slept well. He woke up often but went back to sleep easily once I’d refreshed his water and put a new cold compress on his chest. He… Continue Reading Day 280

Categories: Uncategorized Tags: absolute neutrophil count (ANC), acute lymphoblastic leukemia, antibiotics, fever, mucositis, Stevens Johnson Syndrome6 Comments

Day 279

Laura Gilkey on October 7, 2015October 7, 2015

All things considered, it was a pretty quiet day up here on the seventh floor. This is good, because we got very little sleep last night. Benji’s blood pressure has… Continue Reading Day 279

Categories: Uncategorized Tags: acute lymphoblastic leukemia, burn, creatinine, methotrexate, mucositis9 Comments

Day 278

Laura Gilkey on October 7, 2015October 7, 2015

I couldn’t fall asleep last night. I was reviewing the events of the past ten days, and my anger was mounting. I thought about all of the tests and procedures… Continue Reading Day 278

Categories: Uncategorized Tags: acute lymphoblastic leukemia, blood transfusion, leucovorin, methotrexate, mucositis, platelets9 Comments

Posts navigation

Older posts
Newer posts

Sidebar

Footer Content