At 12:45am, I made toast with butter and honey for Benjamin, who woke up crying of hunger. At 6:45am, I made him tuna and egg salad sandwiches with mango on… Continue Reading Day 207
Day 207
on Tag: hunger
on Day 206
on Benjamin has taken his last dose of Dexamethasone until long term maintenance. We won’t see the steroid again any sooner than November, and I will not be missing it. I… Continue Reading Day 206
Day 205
on I woke up early this morning, feeling fantastic. I felt like a page had turned for me. I felt motivated in a way I haven’t felt in quite some time,… Continue Reading Day 205
Day 203
on This steroid pulse week is bringing up so many emotions. After much frustration I’ve decided to use this as an opportunity for learning. Benjamin will have a steroid pulse every… Continue Reading Day 203