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Benjamin the Brave

Read about our wonderful boy, and about the unique giving opportunity in his name through the Johns Hopkins All Children's Foundation.

Rainbow Stars

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Blog

Our daily journal chronicling Benjamin's leukemia diagnosis, his 772 days of treatment, his life, his death, and his unparalleled bravery.

Day 449

Laura Gilkey on March 26, 2016

The boys had the day off from school today. It was a nice, relaxing Friday; we watched movies and packaged up rainbow stars in the morning. Banyan joined his friends… Continue Reading Day 449

Categories: Uncategorized Tags: acute lymphoblastic leukemia, hunger, prednisone, steroidsLeave a comment

Day 448

Laura Gilkey on March 25, 2016

  Today was Celebrate Learning Day at Benji’s school. Last year, he missed this fun filled day, but the parents and teachers were thoughtful enough to send him t-shirts and… Continue Reading Day 448

Categories: Uncategorized Tags: acute lymphoblastic leukemia, sch4 Comments

Day 447

Laura Gilkey on March 23, 2016

Thanks to social media, I realized that one year ago today marked Benjamin’s return to Southside. He was only there for a few hours, and wouldn’t return again for a… Continue Reading Day 447

Categories: Uncategorized Tags: acute lymphoblastic leukemia, school1 Comment

Day 446

Laura Gilkey on March 22, 2016

Today, our favorite baseball team, the Tampa Bay Rays, had the honor of playing the Cuban national team as part of a diplomatic and highly publicized trip by President Obama… Continue Reading Day 446

Categories: Uncategorized Tags: acute lymphoblastic leukemia, baseball, exhaustion1 Comment

Day 445

Laura Gilkey on March 21, 2016

  I saw the first swallowtail kite of the season today. Benji said he saw one fly over his baseball game on Saturday. They’re right on time here at the… Continue Reading Day 445

Categories: Uncategorized Tags: 6MP, acute lymphoblastic leukemia, prednisone, rainbow stars, school, siblings, steroidsLeave a comment

Day 444

Laura Gilkey on March 20, 2016

Benji’s steroid pulse ended today. He’s rocking his typical Prednisone look: red face, puffy cheeks and belly, warm skin, wide eyes. He fluctuates between sweetness, hunger, and dramatic upset. But mostly… Continue Reading Day 444

Categories: Uncategorized Tags: acute lymphoblastic leukemia, prednisone, steroidsLeave a comment

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