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Benjamin the Brave

Read about our wonderful boy, and about the unique giving opportunity in his name through the Johns Hopkins All Children's Foundation.

Rainbow Stars

Request a Rainbow Star for a child with cancer, volunteer to make stars, or order a prismatic rainbow star to support research.

Blog

Our daily journal chronicling Benjamin's leukemia diagnosis, his 772 days of treatment, his life, his death, and his unparalleled bravery.

Day 527

Laura Gilkey on June 11, 2016

My cheeks hurt from smiling. My heart is so full. The 2nd Annual Sarasota Alex’s Lemonade Stand was a huge success. I was out of the house this morning before… Continue Reading Day 527

Categories: Uncategorized Tags: acute lymphoblastic leukemia, fundraisingLeave a comment

Day 526

Laura Gilkey on June 10, 2016

Tomorrow is the lemonade stand, and I feel eerily prepared (I wonder what we are forgetting?). I just have a great feeling that we will make a big difference tomorrow.… Continue Reading Day 526

Categories: Uncategorized Tags: acute lymphoblastic leukemia, fundraisingLeave a comment

Day 525

Laura Gilkey on June 10, 2016

Today was a Lemonade Stand whirlwind. There are silent auction items covering my dining room table and handmade posters on the floor. My ears are ringing from being on the… Continue Reading Day 525

Categories: Uncategorized Tags: acute lymphoblastic leukemia, fundraising, siblings, steroidsLeave a comment

Day 524

Laura Gilkey on June 9, 2016

I need to use words to make sense of things. That’s clear to me, and it’s why this white space is so therapeutic. Sometimes I can’t find the right words… Continue Reading Day 524

Categories: Uncategorized Tags: acute lymphoblastic leukemia, marriage, PTSD, siblings, steroids2 Comments

Day 523

Laura Gilkey on June 7, 2016June 7, 2016

I’m so thankful for the extra time we gave ourselves this morning. I woke up at 6 and we were on the road by 7:30, even though Benjamin’s appointment at… Continue Reading Day 523

Categories: Uncategorized Tags: 6MP, absolute neutrophil count (ANC), acute lymphoblastic leukemia, methotrexate, siblings, steroidsLeave a comment

Day 522

Laura Gilkey on June 6, 2016

It was the first day of summer, and it was a torrential downpour for most of the day. The season’s first tropical storm has shut down the Sunshine Skyway. Our… Continue Reading Day 522

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