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Benjamin the Brave

Read about our wonderful boy, and about the unique giving opportunity in his name through the Johns Hopkins All Children's Foundation.

Rainbow Stars

Request a Rainbow Star for a child with cancer, volunteer to make stars, or order a prismatic rainbow star to support research.

Blog

Our daily journal chronicling Benjamin's leukemia diagnosis, his 772 days of treatment, his life, his death, and his unparalleled bravery.

Day 545

Laura Gilkey on June 29, 2016June 29, 2016

I have to say, we do birthdays right around here. Balloons. Pancakes. A new bicycle. Adventure. Picnics. Surprises. Friends. Trampoline Park. Family. Low country boil. Presents galore. Froyo. And a… Continue Reading Day 545

Categories: Uncategorized Tags: acute lymphoblastic leukemia, birthday, siblingsLeave a comment

Day 544

Laura Gilkey on June 29, 2016

Benjamin was nausea free again this morning, but his ear was throbbing. It was throbbing last night, too. He couldn’t lie on his right side. When his symptoms persisted this… Continue Reading Day 544

Categories: Uncategorized Tags: acute lymphoblastic leukemia, infection, siblingsLeave a comment

Day 543

Laura Gilkey on June 27, 2016

I am so happy to record that Benjamin woke up nausea free. He had zero tummy pain all day. This is a big relief. Both boys slept in, and we… Continue Reading Day 543

Categories: Uncategorized Tags: acute lymphoblastic leukemia1 Comment

Day 542

Laura Gilkey on June 26, 2016June 27, 2016

Benjamin was so tired from his day on the water last night that he fell asleep in our bed, watching TV with Banyan, before it was time to take his… Continue Reading Day 542

Categories: Uncategorized Tags: 6MP, acute lymphoblastic leukemia, fever, kytril, methotrexate, nausea, septra, siblings, travel1 Comment

Day 541

Laura Gilkey on June 25, 2016

Banyan’s birthday party has ended. Nine boys have made 24 hours worth of amazing memories. We are so grateful to Kathy for hosting this extravaganza yet again; it seems to… Continue Reading Day 541

Categories: Uncategorized Tags: acute lymphoblastic leukemia, birthday, septra, siblings1 Comment

Day 540

Laura Gilkey on June 24, 2016June 25, 2016

Benji’s mornings continue to be tender. This morning he was tired and he felt nauseous. Again, he just wanted to rest. By late morning he was feeling much better. Tonight,… Continue Reading Day 540

Categories: Uncategorized Tags: acute lymphoblastic leukemia, exhaustion, nausea, siblings1 Comment

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