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Benjamin the Brave

Read about our wonderful boy, and about the unique giving opportunity in his name through the Johns Hopkins All Children's Foundation.

Rainbow Stars

Request a Rainbow Star for a child with cancer, volunteer to make stars, or order a prismatic rainbow star to support research.

Blog

Our daily journal chronicling Benjamin's leukemia diagnosis, his 772 days of treatment, his life, his death, and his unparalleled bravery.

Day 341

Laura Gilkey on December 8, 2015

In the new normal I’ve been sculpting, Tuesdays are my days to work on all things cancer related. Today, after a gorgeous blue morning bridge walk and two school drop-offs,… Continue Reading Day 341

Categories: Uncategorized Tags: acute lymphoblastic leukemia, hair, methotrexate, toxicity2 Comments

Day 340

Laura Gilkey on December 7, 2015

Michael woke up before dawn to go to his Monday morning breakfast meeting. None of the rest of us seemed to want to get out of bed. I pushed it… Continue Reading Day 340

Categories: Uncategorized Tags: 6MP, acute lymphoblastic leukemia, healios, methotrexate, mucositis, toxicityLeave a comment

Day 339

Laura Gilkey on December 7, 2015December 7, 2015

Benji woke up early with a bad tummy ache. Clutching, desperation, bathtub, the whole nine yards. I sat in my spot next to the tub and studied him. I wasn’t… Continue Reading Day 339

Categories: Uncategorized Tags: acute lymphoblastic leukemia, septra1 Comment

Day 338

Laura Gilkey on December 6, 2015

Today felt like a holy day. It was full of sacred moments. We stayed in Sarasota this weekend, but it was a hard decision. My sister threw a party at her… Continue Reading Day 338

Categories: Uncategorized Tags: acute lymphoblastic leukemia, antibiotics, septra, spirituality1 Comment

Day 337

Laura Gilkey on December 5, 2015December 5, 2015

It’s Friday. Fridays used to be clinic days. Now Fridays are bagel days. We started the day at our favorite bagel joint and things just fell into place afterwards. Life… Continue Reading Day 337

Categories: Uncategorized Tags: 6MP, acute lymphoblastic leukemia, methotrexate, mucositis, oral chemotherapyLeave a comment

Day 336

Laura Gilkey on December 4, 2015December 4, 2015

These shortening days are meant for healing. I believe that. I started this day up on the Ringling Bridge, looking up at the halo around the half moon and Jupiter… Continue Reading Day 336

Categories: Uncategorized Tags: acute lymphoblastic leukemia3 Comments

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