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Benjamin the Brave

Read about our wonderful boy, and about the unique giving opportunity in his name through the Johns Hopkins All Children's Foundation.

Rainbow Stars

Request a Rainbow Star for a child with cancer, volunteer to make stars, or order a prismatic rainbow star to support research.

Blog

Our daily journal chronicling Benjamin's leukemia diagnosis, his 772 days of treatment, his life, his death, and his unparalleled bravery.

Day 575

Laura Gilkey on July 29, 2016

Kathy asked Benjamin to join her for breakfast this morning, a swim at her house, and lunch, so that they could spend some time together. He was excited to go,… Continue Reading Day 575

Categories: Uncategorized Tags: acute lymphoblastic leukemia, detoxification, naturopath, siblings, sweat, writingLeave a comment

Day 574

Laura Gilkey on July 28, 2016

Benjamin slept a full twelve hours last night. Of course my mind was racing, and when he woke up I was staring intently at every bruise on his body, at… Continue Reading Day 574

Categories: Uncategorized Tags: acute lymphoblastic leukemia, make-a-wish1 Comment

Day 573

Laura Gilkey on July 27, 2016July 27, 2016

Benjamin has been in the long term maintenance phase of treatment–and off of the seventh floor at All Children’s–for nine months. I had to do the math twice, I couldn’t… Continue Reading Day 573

Categories: Uncategorized Tags: acute lymphoblastic leukemia, anxiety, blood transfusion1 Comment

Day 572

Laura Gilkey on July 26, 2016

Just as quickly as anxiety comes, it leaves again. Even in the face of symptoms that might incite fear, control comes easily.  I don’t try to reason with these waves… Continue Reading Day 572

Categories: Uncategorized Tags: acute lymphoblastic leukemia, detoxification, friends, sweatLeave a comment

Day 571

Laura Gilkey on July 25, 2016July 26, 2016

It was another rich, full day here in Sarasota. Benjamin woke up with fishing on the brain. I made a bargain with him, and told him I’d take him to… Continue Reading Day 571

Categories: Uncategorized Tags: acute lymphoblastic leukemia, anxiety1 Comment

Day 570

Laura Gilkey on July 24, 2016

We are all home together tonight, minus one. Banyan is halfway through his summer camp experience. I’m missing his smile a lot right now. While Michael was wrapping up his… Continue Reading Day 570

Categories: Uncategorized Tags: acute lymphoblastic leukemia, grandparents2 Comments

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