For the first time since long term maintenance began, Benjamin went to school on the day following a lumbar puncture. I had a feeling he would. He woke up easily and calmly… Continue Reading Day 468
Tag: maintenance
Day 467
Benjamin began his third cycle of long term maintenance today. He woke up calmly and contently. He did not complain when he couldn’t eat breakfast. He did not complain when I placed… Continue Reading Day 467
Day 466
I couldn’t sleep last night. I don’t know if it was tomorrow’s hospital trip on the brain, or the afternoon Chai I should have skipped, but my mind was racing.… Continue Reading Day 466
Day 465
We are home, sun-soaked and tired. We made the most of our final staycation day with the boys. Banyan and Benji shared our backyard hammock this morning and enjoyed the view… Continue Reading Day 465
Day 327
Our bags are packed and waiting by the door. The four wheelers and dirt bikes are strapped onto the trailer hitched to Michael’s truck. All of the medicines, supplements, oils… Continue Reading Day 327
Day 296
Benji’s emotional highs and lows persist. There are so many parallels between this recovery period and his steroid weeks (perhaps I should give him potassium?). He’ll begin his first pulse… Continue Reading Day 296