We headed over the Sunshine Skyway bright and early this morning. Benji’s favorite team of nurses in the Infusion Center were ready and waiting for him, with more dancing and… Continue Reading Day 62
Tag: hospital homebound
Day 48
Week 2 of Consolidation. 3 trips over the bridge down, 1 to go. Benjamin’s clinic visit today was relatively uneventful (as uneventful as an appointment to inject chemotherapy into your child’s body… Continue Reading Day 48
Day 21
I absorbed some of Benjamin’s school self-consciousness this morning as I walked onto his campus for the first time since his diagnosis. There have been so many acts of kindness… Continue Reading Day 21
Day 20
The lesson today is one I should know by now. There are no “patterns.” One day at a time. Benjamin was super tired today. Two naps by 1pm. The irritability… Continue Reading Day 20
Day 13
We are surrounded by blessings. There are moments of pain, fear, panic, and exhaustion every day. But all we have to do is look, and we find blessings. Family and… Continue Reading Day 13
Day 11
Our daily chemotherapy steroid, dexamethasone, is really revving up Benjamin’s appetite. It’s a far cry from where we were a few days ago in the hospital. This morning, before Banyan… Continue Reading Day 11